Groundbreaking ME/CFS Research
Your support brings us closer to the answers.
Since 2012, Open Medicine Foundation has raised
over $19.5 million to fund ME/CFS research.
Thanks to your support, OMF has been able to fund and facilitate groundbreaking research around the world. Your support can help us find effective treatments and a cure. Answers are closer than ever before! Here are some highlights of what we've accomplished together over the years!
OMF sponsors a 3-day Working Group Meeting and Community Symposium on the Molecular Basis of ME/CFS at Stanford University.
New OMF-funded ME/CFS Collaborative Research Center at Harvard hosts Finding Clarity, a one-day science meeting and the inaugural symposium on ME/CFS.
New OMF-funded ME/CFS Collaborative Research Center launched at Uppsala University, Uppsala, Sweden, under the direction of Jonas Bergquist, MD, PhD.
OMF-Funded Research Publications
New Science Liaison
Christopher Armstrong, PhD, joins the OMF team as Science Liaison.
End ME/CFS Worldwide Tour Continues
Linda conducts the third End ME/CFS Worldwide Tour and speaks with patients, clinicians, researchers, and supporters in London, Germany, and Denmark.
Invest in ME Research
Dr. Davis speaks at the Biomedical Research into ME Colloquium and the Invest in ME Research International ME Conference in London, which several members of OMF’s Scientific Advisory Board and Chris Armstrong also attend. Linda hosts an exhibit table to greet conference participants.
Attending First NIH Summit on ME/CFS
Members of the OMF scientific research team participated in this inaugural summit of the NIH on ME/CFS.
Members of the OMF scientific research team participated in the Emerge Australia International Research Symposium.
Linda Tannenbaum attends ME/CFS Clinicians Summit organized by Mary Dimmock and Dr. Lucinda Bateman at the Bateman Horne Center in Salt Lake City, Utah.
The Second Annual May Momentum campaign raises over $130,000 and includes video messages from patients projected onscreen in Times Square on May 12, International ME/CFS Awareness Day.
Triple Digit Increase in Social Media Traffic
OMF’s Social Media presence is growing. As of the end of July, we have over 31,000 followers on Facebook, 6,200 followers on Twitter, and over 2,700 followers on Instagram alone. In all, over 40,000 people are engaging with OMF through social media.
With your support, OMF raises over $19.5 million since founded in August 2012.
(as of August 15, 2019)
OMF sponsors a 3-day Working Group Meeting and Community Symposium on the Molecular Basis of ME/CFS at Stanford University. More than 50 researchers from around the world come together to openly share their research to understand, diagnose, and cure ME/CFS. The Community Symposium draws 300 attendees in person as well as 4,800 who Livestream the event.
OMF receives $1 million from anonymous bitcoin investor, the Pineapple Fund, in response to overwhelming support from patients and community on Reddit, a social media site.
Pineapple Fund donates an additional $4 million after social media communications expressing need and impact are shared with donor.
OMF funds expansion of research projects at the ME/CFS Collaborative Research Center at Stanford University.
OMF funds and launches the ME/CFS Clinical Collaborative Research Center at the Harvard Medical School affiliated hospitals, led by OMF Scientific Advisory Board members, Drs. Ronald Tompkins and Wenzhong Xiao.
OMF-funded Red Blood Cell Deformability research study publishes, open source, in Clinical Hemorheology and Microcirculation.
Funds More Research Scientists
Funds hiring of bioinformaticians and computer scientists at Stanford and Harvard Universities.
Fundraising achieves over $1.5 million for research.
Linda and Dr. Ron Davis attend ME/CFS Clinicians Summit organized by Mary Dimmock and Dr. Lucinda Bateman at the Bateman Horne Center in Salt Lake City, Utah.
Partners with Several Women's Coalitions
OMF partners with the Women’s Health Equity Coalition, hosted by Hadassah, and the 2018 Forward Feminism Conference, hosted by the National Organization for Women (NOW).
Deal with IT
Linda speaks about ME/CFS at “Deal with It, a Women’s Conference,” funded by the Motion Picture Television Fund.
Linda and Dr. Ron Davis attend and present at the “Advancing an International Research Agenda to Address ME/CFS Research Priorities: From Basic Research to Clinical Practice” held in Montreal, Canada, organized by Dr. Alain Moreau.
Linda conducts the second End ME/CFS Worldwide Tour and speaks with patients, clinicians, researchers, and supporters in London, the Netherlands, and Italy.
Dr. Davis speaks at the Biomedical Research into ME Colloquium and the Invest in ME Research International ME Conference in London. Linda hosts an exhibit table to greet conference participants.
OMF Reaches People in More than 100 Countries
Communications are translated by volunteers in multiple languages.
Linda Tannenbaum is named 2017 ME/CFS Advocate of the Year by ProHealth, a leading media site about ME/CFS and other chronic complex diseases.
Stuart Murdoch, co-founder of the popular Scottish band, Belle and Sebastian, becomes OMF Ambassador and promotes OMF on his social media.
Michael Strasser, a world renown long-distance , in which he became the world record holder for cycling from Alaska to Patagonia and is now in the Guinness Book of World Records for this ride.
Linda's post on ME/CFS, "When Fatigue Won't Go Away," appears on ThriveGlobal, a popular website about well-being and health founded by Huffington Post founder Arianna Huffington.
Establishes Open Medicine Foundation Canada (OMF Canada)
Establishes OMF Canada Foundation Board.
Wins 2018 Top-Rated Nonprofit Award
With your support, OMF raises over $18.3 million since founded in August 2012.
(as of December 2018)
OMF establishes and funds the ME/CFS Collaborative Research Center at Stanford University under the direction of Dr. Ron Davis.
OMF funds and helps create OMF ME/CFS Data Center to begin analysis of Severely Ill Big Data Study, led by Dr. Davis and Wenzhong Xiao, PhD, with data available on OMF website for researchers around the world.
OMF funds Dr. Jonas Bergquist’s team at Uppsala University, Sweden looking at ME/CFS antibodies in the blood and spinal fluid.
Increases Global Reach
OMF translates weekly and general communications about its research into multiple languages connecting with people in over 100 countries.
Dr. Davis speaks at the Biomedical Research into ME Colloquium and the Invest in ME Research International ME Conference in London. Linda hosts an exhibit table to greet conference participants from over 15 countries.
Linda delivers 21 presentations in six countries and seven U.S. cities.
Linda presents to both Parliament and government officials in the Isle of Man and Belfast to improve patient support services.
OMF sponsors the Symposium on the Molecular Basis of ME/CFS at Stanford University and a two-day science Working Group meeting with over 30 scientists. 2,700 participants view the Community Symposium via free Livestream and 300 participants attend in person.
Unrest with Film Director, Jennifer Brea
OMF attends premier at the Sundance Film Festival and participates on several panels after showings of the film in Northern and Southern California.
Adds to the OMF Staff Team
Debby Husch joins OMF as Administrative Manager.
Partners with #MillionsMissing
Attends demonstration in Sacramento, California.
Promotes resources to benefit children with ME/CFS by preparing educational materials for parents to know their rights for improving school accommodations.
Wins 2017 Top-Rated Nonprofit Award
Great Nonprofits honors OMF for positive donor reviews.
With your support, OMF raises over $9.18 million since founded in August 2012.
OMF funds Robert K. Naviaux, MD, PhD, University of San Diego, California, to validate his previously published metabolomics study.
OMF adds Director of Communication & Development
Former ALS Association Development & Community Services Vice President, Marilyn Simon-Gersuk joins OMF.
Dr. Ron Davis speaks at the Biomedical Research into ME Colloquium and the Invest in ME Research International Conference in London. Linda hosts an exhibit table to greet conference participants from over 15 countries.
Gains international exposure at IACFS/ME Conference
Dr. Ron Davis, Dr. David Bell, Linda Tannenbaum, and Marilyn Simon-Gersuk attend the IACFS/ME Conference in Fort Lauderdale, Florida. Dr. Davis gives a presentation. OMF has a well-attended exhibit table to meet the participating international community.
Crowdchange is a personal fundraising platform for peer-to-peer fundraising.
Partners with ProHealth and Precision Medicine World Conference for increased awareness and support.
Establishes global communications with thousands of patients by building OMF Team International in over 90 countries.
Great Nonprofits honors OMF for positive donor reviews.
OMF receives Platinum Award for nonprofit transparency and donor accountability by Guidestar. (Guidestar measures effectiveness and transparency of nonprofits in alliance with their mission.)
With your support, OMF raises over $6.15 million since founded in August 2012.
OMF launches Severely ill Big Data Study (SIPS) with 20 patients and 10 controls. Following sample collection, SIPS project gets underway with over 1,000 tests – both clinical and research – for each patient.
OMF continues to raise funds and accelerate research.
Linda organizes meeting with five NIH institute managers after Pathways to Prevention (P2P) ME/CFS meeting, where she meets Vicky Whittemore, PhD, program director of NINDS (National Institute of Neurological Disorders and Stroke, NIH).
Dr. Whittemore Becomes ME/CFS Champion
Follow-up meeting with Dr. Whittemore leads to Dr. Whittemore committing to be a “ME/CFS Champion at NIH.” Dr. Whittemore proceeds to be instrumental in escalating NIH and the Trans-NIH ME/CFS Working Group to focus on ME/CFS.
Linda meets with the president and staff at the Society of Women’s Health Research in Washington, D.C. and succeeds in publishing her article regarding ME/CFS in their journal and in the Huffington Post. Linda’s articles alert and bring awareness to thousands of women.
Society of Women’s Health Research Fundraising Gala
Linda, Ron Davis, and Ronald G. Tompkins, MD, attend the Society of Women’s Health Research Fundraising Gala, where Dr. Davis tells NIH Director Francis Collins in person about his severely ill son and the urgent need for increased funding for ME/CFS research.
Great Nonprofits awards OMF for positive donor reviews.
Takes Fundraising Up a Notch
Hires fundraising consulting company to take fundraising to the next level.
With your support, OMF raises over $4.18 million since founded in August 2012.
They agree to establish an OMF Scientific Advisory Board (SAB). Linda tells Ron that if Ron Davis “brings in researchers, OMF will bring the funding.” Ronald Davis is the director of the Stanford Genome Technology Center and a member of the National Academy of Sciences as well as professor of Biochemistry and Genetics at Stanford University School of Medicine.
SAB is composed of an interdisciplinary team of remarkable researchers, which includes three Nobel Laureates and several members of the National Academy of Sciences.
First Scientific Advisory Board (SAB) Meeting
The first SAB meeting is held in October 2014 at Linda's home in Los Angeles.
The first fundraising event for OMF coincides with the movie premiere of Ryan Prior’s Forgotten Plague, at the TCL Grauman’s Chinese Theater in Hollywood, California.
Search for a Biomarker
OMF raises money for the first major research project recommended by the SAB -- the Severely Ill Patient Big Data Study (SIPS) -- to examine the most severely ill patients for the strongest signals in search for a biomarker.
With your support, OMF raises over $2 million since founded in August 2012.
Linda and volunteer team build community international database and begin connecting and communicating with individuals and organizations all over the world about ME/CFS, fibromyalgia, chronic Lyme, and autism.
OMF Gets Social
Volunteers help set up social media for OMF and begin to build outreach and awareness.
Linda Approaches Potential Donors
Begins approaching potential donors and develops a database to raise funds for early research.
Funds First Research Projects
Funds initial research projects. Fundraisers via NIDA and OMF support initial studies.
Gets the Word Out About ME/CFS
Linda is the speaker at the pre-conference dinner for the Invest in ME Conference held in London.
Establishes a Worldwide Perspective
Visits researchers and patients in Sweden to begin international personal outreach.
With your support, OMF raises over $1.63 million since founded in August 2012.
Linda Tannenbaum Helps Organize MERIT
The MERIT (Myalgic Encephalomyelitis Research, Immunology and Treatment) meeting is held in New York City with 20 researchers and clinician experts (half from the U.S. and half international) attend the event.
The Founding of OMF
Linda registers Open Medicine Foundation (OMF) as a California 501(c)(3) nonprofit with the purpose of accelerating research for chronic complex diseases.
Linda Sets Up the Infrastructure for OMF
Small ‘family and friends’ fundraisers via Neuro-Immune Disease Alliance (NIDA); NIDA wins $20,000 through a contest generated on social media.