Open Medicine Foundation®
Leading research. Delivering hope.
ME/CFS and related chronic complex diseases

OMF Milestones

Since 2012, Open Medicine Foundation has raised over $18.3 million to fund research on ME/CFS.
OMF Research Funds by year 1-3-2019

Thanks to your support, OMF has been able to fund and facilitate groundbreaking research around the world. Your support can help us find effective treatments and a cure. Answers are closer than ever before. Here are some highlights of what we've accomplished together over the years!

2018
2018 Working Group Meeting
  • OMF Sponsors Second Annual Community Symposium & Working Group Meeting

    OMF sponsors a 3-day Working Group Meeting and Community Symposium on the Molecular Basis of ME/CFS at Stanford University. More than 50 researchers from around the world come together to openly share their research to understand, diagnose, and cure ME/CFS. The Community Symposium draws 300 attendees in person as well as 4,800 who Livestream the event.

  • $1 Million Bitcoin Donation

    OMF receives $1 million from anonymous bitcoin investor, the Pineapple Fund, in response to overwhelming support from patients and community on Reddit, a social media site.

  • And Another $4 Million!

    Pineapple Fund donates an additional $4 million after social media communications expressing need and impact are shared with donor.

  • Expands ME/CFS Collaborative Research Center at Stanford University

    OMF funds expansion of research projects at the ME/CFS Collaborative Research Center at Stanford University.

  • Launches ME/CFS Clinical Collaborative Research Center at Harvard

    OMF funds and launches the ME/CFS Clinical Collaborative Research Center at the Harvard Medical School affiliated hospitals, led by OMF Scientific Advisory Board members, Drs. Ronald Tompkins and Wenzhong Xiao.

  • OMF-Funded Research Publishes

    OMF-funded Red Blood Cell Deformability research study publishes, open source, in Clinical Hemorheology and Microcirculation.

  • Funds More Research Scientists

    Funds hiring of bioinformaticians and computer scientists at Stanford and Harvard Universities.

  • Triple Tuesday OMF Soars

    Fundraising achieves over $1.5 million for research.

  • Clinician Summit

    Linda and Dr. Ron Davis attend ME/CFS Clinicians Summit organized by Mary Dimmock and Dr. Lucinda Bateman at the Bateman Horne Center in Salt Lake City, Utah.

Worldwide tour webpage header
  • Partners with Several Women's Coalitions

    OMF partners with the Women’s Health Equity Coalition, hosted by Hadassah, and the 2018 Forward Feminism Conference, hosted by the National Organization for Women (NOW).

  • Deal with IT

    Linda speaks about ME/CFS at “Deal with It, a Women’s Conference,” funded by the Motion Picture Television Fund.

  • Canadian Collaborative Team Conference

    Linda and Dr. Ron Davis attend and present at the Advancing an International Research Agenda to Address ME/CFS Research Priorities: From Basic Research to Clinical Practice” held in Montreal, Canada, organized by Dr. Alain Moreau.

  • Second End ME/CFS Worldwide Tour

    Linda conducts the second End ME/CFS Worldwide Tour and speaks with patients, clinicians, researchers, and supporters in London, the Netherlands, and Italy.

  • Invest in ME Research

    Dr. Davis speaks at the Biomedical Research into ME Colloquium and the Invest in ME Research International ME Conference in London. Linda hosts an exhibit table to greet conference participants.

  • OMF Reaches People in More than 100 Countries

    Communications are translated by volunteers in multiple languages.

  • ME/CFS Advocate of the Year

    Linda Tannenbaum is named 2017 ME/CFS Advocate of the Year by ProHealth, a leading media site about ME/CFS and other chronic complex diseases.

  • OMF Announces New Ambassador

    Stuart Murdoch, co-founder of the popular Scottish band, Belle and Sebastian, becomes OMF Ambassador and promotes OMF on his social media.

  • Bicyclist Raises $26,000 for OMF in the Ice2Ice Challenge

    Michael Strasser, a world renown long-distance , in which he became the world record holder for cycling from Alaska to Patagonia and is now in the Guinness Book of World Records for this ride. 

  • "When Fatigue Won't Go Away," Appears on ThriveGlobal

    Linda's post on ME/CFS, "When Fatigue Won't Go Away," appears on ThriveGlobal, a popular website about well-being and health founded by Huffington Post founder Arianna Huffington.

  • Establishes Open Medicine Foundation Canada (OMF Canada)

    Establishes OMF Canada Foundation Board.

  • Wins 2018 Top-Rated Nonprofit Award
Linda Tannenbaum, Founder & CEO/President with Stuart Murdoch, Belle & Sebastian
Linda Tannenbaum, Founder & CEO/President with Stuart Murdoch, Belle & Sebastian

With your support, OMF raises over $18.3 million since founded in August 2012.

(as of December 2018)
2017
Big Data Analytics tranp
2017 symposium group
  • Dr. Davis Speaks at Research Conferences

    Dr. Davis speaks at the Biomedical Research into ME Colloquium and the Invest in ME Research International ME Conference in London. Linda hosts an exhibit table to greet conference participants from over 15 countries.

  • End ME/CFS Worldwide Tour

    Linda delivers 21 presentations in six countries and seven U.S. cities.

  • International Progress

    Linda presents to both Parliament and government officials in the Isle of Man and Belfast to improve patient support services.

  • First Community Symposium on the Molecular Basis of ME/CFS & Working Group Meeting

    OMF sponsors the Symposium on the Molecular Basis of ME/CFS at Stanford University and a two-day science Working Group meeting with over 30 scientists. 2,700 participants view the Community Symposium via free Livestream and 300 participants attend in person.

  • Unrest with Film Director, Jennifer Brea

    OMF attends premier at the Sundance Film Festival and participates on several panels after showings of the film in Northern and Southern California.

  • Adds to the OMF Staff Team

    Debby Husch joins OMF as Administrative Manager.

  • Partners with #MillionsMissing

    Attends demonstration in Sacramento, California.

  • Launches TEACH M.E. Education Outreach

    Promotes resources to benefit children with ME/CFS by preparing educational materials for parents to know their rights for improving school accommodations.

  • Wins 2017 Top-Rated Nonprofit Award

    Great Nonprofits honors OMF for positive donor reviews.

With Jen at Premier

With your support, OMF raises over $9.18 million since founded in August 2012.

2016
Millions Missing Sept 2016
  • Gains international exposure at IACFS/ME Conference

    Dr. Ron Davis, Dr. David Bell, Linda Tannenbaum, and Marilyn Simon-Gersuk attend the IACFS/ME Conference in Fort Lauderdale, Florida. Dr. Davis gives a presentation. OMF has a well-attended exhibit table to meet the participating international community.

  • Partners with Crowdchange to Build Team OMF

    Crowdchange is a personal fundraising platform for peer-to-peer fundraising.

  • Builds Awareness

    Partners with ProHealth and Precision Medicine World Conference for increased awareness and support.

Team OMF final 3

With your support, OMF raises over $6.15 million since founded in August 2012.

2015
  • Severely Ill Patient Project

    OMF launches Severely ill Big Data Study (SIPS) with 20 patients and 10 controls.   Following sample collection, SIPS project gets underway with over 1,000 tests – both clinical and research – for each patient.

  • Establishes the End ME/CFS Project

    OMF continues to raise funds and accelerate research.

  • Organizes Meeting with NIH

    Linda organizes meeting with five NIH institute managers after Pathways to Prevention (P2P) ME/CFS meeting, where she meets Vicky Whittemore, PhD, program director of NINDS (National Institute of Neurological Disorders and Stroke, NIH).

  • Dr. Whittemore Becomes ME/CFS Champion

    Follow-up meeting with Dr. Whittemore leads to Dr. Whittemore committing to be a “ME/CFS Champion at NIH.” Dr. Whittemore proceeds to be instrumental in escalating NIH and the Trans-NIH ME/CFS Working Group to focus on ME/CFS.

Linda Vicki Whittemore London 2016 crop
Triple Giving logo 2017
  • Huffington Post Article

    Linda meets with the president and staff at the Society of Women’s Health Research in Washington, D.C. and succeeds in publishing her article regarding ME/CFS in their journal and in the Huffington Post. Linda’s articles alert and bring awareness to thousands of women.

  • Society of Women’s Health Research Fundraising Gala

    Linda, Ron Davis, and Ronald G. Tompkins, MD, attend the Society of Women’s Health Research Fundraising Gala, where Dr. Davis tells NIH Director Francis Collins in person about his severely ill son and the urgent need for increased funding for ME/CFS research.

  • OMF Wins the 2015 Top-Rated Award

    Great Nonprofits awards OMF for positive donor reviews.

  • Takes Fundraising Up a Notch

    Hires fundraising consulting company to take fundraising to the next level.

With your support, OMF raises over $4.18 million since founded in August 2012.

2014
  • Linda partners with Ronald W. Davis, PhD

    They agree to establish an OMF Scientific Advisory Board (SAB). Linda tells Ron that if Ron Davis “brings in researchers, OMF will bring the funding.” Ronald Davis is the director of the Stanford Genome Technology Center and a member of the National Academy of Sciences as well as professor of Biochemistry and Genetics at Stanford University School of Medicine.

  • Ron Davis Establishes and Builds the OMF Scientific Advisory Board (SAB)

    SAB is composed of an interdisciplinary team of remarkable researchers, which includes three Nobel Laureates and several members of the National Academy of Sciences.

OMF Poster Scientific Board
  • First Scientific Advisory Board (SAB) Meeting

    The first SAB meeting is held in October 2014 at Linda's home in Los Angeles.

  • First OMF Fundraising Event

    The first fundraising event for OMF coincides with the movie premiere of Ryan Prior’s Forgotten Plague, at the TCL Grauman’s Chinese Theater in Hollywood, California.

  • Search for a Biomarker

    OMF raises money for the first major research project recommended by the SAB -- the Severely Ill Patient Big Data Study (SIPS) -- to examine the most severely ill patients for the strongest signals in search for a biomarker.

Forgotten Plague

With your support, OMF raises over $2 million since founded in August 2012.

2013
  • Builds Community

    Linda and volunteer team build community international database and begin connecting and communicating with individuals and organizations all over the world about ME/CFS, fibromyalgia, chronic Lyme, and autism.

  • OMF Gets Social

    Volunteers help set up social media for OMF and begin to build outreach and awareness.

  • Linda Approaches Potential Donors

    Begins approaching potential donors and develops a database to raise funds for early research.

  • Funds First Research Projects

    Funds initial research projects. Fundraisers via NIDA and OMF support initial studies.

  • Gets the Word Out About ME/CFS

    Linda is the speaker at the pre-conference dinner for the Invest in ME Conference held in London.

  • Establishes a Worldwide Perspective

    Visits researchers and patients in Sweden to begin international personal outreach.

linda-and-ron-in-london

With your support, OMF raises over $1.63 million since founded in August 2012.

2012
  • Linda Tannenbaum Helps Organize MERIT

    The MERIT (Myalgic Encephalomyelitis Research, Immunology and Treatment) meeting is held in New York City with 20 researchers and clinician experts (half from the U.S. and half international) attend the event. 

  • The Founding of OMF

    Linda registers Open Medicine Foundation (OMF) as a California 501(c)(3) nonprofit with the purpose of accelerating research for chronic complex diseases.

  • Linda Sets Up the Infrastructure for OMF

    Small ‘family and friends’ fundraisers via Neuro-Immune Disease Alliance (NIDA); NIDA wins $20,000 through a contest generated on social media.

OMF Poster Organization

With your support, OMF raises over $123,000 since founded in August 2012.

Signifies significant OMF event or achievement.