Thanks to your support, OMF has been able to fund and facilitate groundbreaking research around the world. Your support can help us find effective treatments and a cure. Answers are closer than ever before! Here are some highlights of what we’ve accomplished together over the years!
March 11, 2021
February 16, 2021
February 11, 2021
November 17, 2020
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May 26, 2020
The Second Annual May Momentum campaign raises over $130,000 and includes video messages from patients projected onscreen in Times Square on May 12, International ME / CFS Awareness Day.
Television actress and long-time ME / CFS advocate Amy Carlson joins OMF Ambassadors and promotes OMF on her social media.
Karin’s first video in support of OMF draws 35,000+ reach on Facebook.
Linda Tannenbaum attends ME / CFS Clinicians Summit organized by Mary Dimmock and Dr. Lucinda Bateman at the Bateman Horne Center in Salt Lake City, Utah.
Members of the OMF scientific research team participated in this inaugural summit of the NIH on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS).
Dr. Davis speaks at the Biomedical Research into ME Colloquium and the Invest in ME Research International ME Conference in London, which several members of OMF’s Scientific Advisory Board and Chris Armstrong also attend. Linda hosts an exhibit table to greet conference participants.
Linda conducts the third End ME / CFS Worldwide Tour and speaks with patients, clinicians, researchers, and supporters in London, Germany, and Denmark.
OMF’s Linda Tannenbaum, Ron Davis, Ron Tompkins and Chris Armstrong are each interviewed by Llewllyn King for ME / CFS Alert.
Scientific Advisory Board Member Alan Moreau, together with OMFCA volunteer Marie-Josee Menard are interviewed on the national program, CBC Toronto News.
Linda Tannenbaum and Llewellyn King were interviewed by Joe Madison for his award-winning Sirius radio program.
CNN news article by Ryan Prior features Dr. Ron Davis and son Whitney.
Multiple mainstream media cover Dr. Ron Davis’s publication about the nanoneedle diagnostic test.
New OMF funded ME / CFS Collaborative Research Center launched at Uppsala University, Uppsala, Sweden, under the direction of Jonas Bergquist, MD, PhD.
The topic is the Molecular Basis of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) at Stanford University.
to explore the current state of care for ME / CFS patients and explore new collaborations among specialists.
Communications are translated by volunteers in multiple languages.
Linda speaks about ME / CFS at “Deal with It, a Women’s Conference,” funded by the Motion Picture Television Fund.
OMF partners with the Women’s Health Equity Coalition, hosted by Hadassah, and the 2018 Forward Feminism Conference, hosted by the National Organization for Women (NOW).
Funds hiring of bioinformaticians and computer scientists at Stanford and Harvard Universities.
OMF funds expansion of research projects at the ME / CFS Collaborative Research Center at Stanford University.
Pineapple Fund donates an additional $4 million after social media communications expressing need and impact are shared with donor.
OMF receives $1 million from anonymous bitcoin investor, the Pineapple Fund, in response to overwhelming support from patients and community on Reddit, a social media site.
OMF sponsors a 3-day Working Group Meeting and Community Symposium on the Molecular Basis of ME / CFS at Stanford University. More than 50 researchers from around the world come together to openly share their research to understand, diagnose, and cure ME / CFS. The Community Symposium draws 300 attendees in person as well as 4,800 who Livestream the event.
Great Nonprofits honors OMF for positive donor reviews.
Attends demonstration in Sacramento, California.
Debby Husch joins OMF as Administrative Manager.
OMF attends premier at the Sundance Film Festival and participates on several panels after showings of the film in Northern and Southern California.
OMF sponsors the Symposium on the Molecular Basis of ME / CFS at Stanford University and a two-day science Working Group meeting with over 30 scientists. 2,700 participants view the Community Symposium via free Livestream and 300 participants attend in person.
Partners with ProHealth and Precision Medicine World Conference for increased awareness and support.
Dr. Ron Davis, Dr. David Bell, Linda Tannenbaum, and Marilyn Simon-Gersuk attend the IACFS/ME Conference in Fort Lauderdale, Florida. Dr. Davis gives a presentation. OMF has a well-attended exhibit table to meet the participating international community.
Dr. Ron Davis speaks at the Biomedical Research into ME Colloquium and the Invest in ME Research International Conference in London. Linda hosts an exhibit table to greet conference participants from over 15 countries.
Former ALS Association Development & Community Services Vice President, Marilyn Simon-Gersuk joins OMF.
Hires fundraising consulting company to take fundraising to the next level.
Linda, Ron Davis, and Ronald G. Tompkins, MD, attend the Society of Women’s Health Research Fundraising Gala, where Dr. Davis tells NIH Director Francis Collins in person about his severely ill son and the urgent need for increased funding for ME / CFS research.
Follow-up meeting with Dr. Whittemore leads to Dr. Whittemore committing to be a “ME / CFS Champion at NIH.” Dr. Whittemore proceeds to be instrumental in escalating NIH and the Trans-NIH ME / CFS Working Group to focus on ME / CFS.
OMF raises money for the first major research project recommended by the SAB — the Severely Ill Patient Big Data Study (SIPS) — to examine the most severely ill patients for the strongest signals in search for a biomarker.
The first SAB meeting is held in October 2014 at Linda’s home in Los Angeles.
Visits researchers and patients in Sweden to begin international personal outreach.
Linda is the speaker at the pre-conference dinner for the Invest in ME Conference held in London.
Funds initial research projects. Fundraisers via NIDA and OMF support initial studies.
Begins approaching potential donors and develops a database to raise funds for early research.
Volunteers help set up social media for OMF and begin to build outreach and awareness.
Linda and volunteer team build community international database and begin connecting and communicating with individuals and organizations all over the world about ME / CFS, fibromyalgia, chronic Lyme, and autism.
Small ‘family and friends’ fundraisers via Neuro-Immune Disease Alliance (NIDA); NIDA wins $20,000 through a contest generated on social media.
The MERIT (Myalgic Encephalomyelitis Research, Immunology and Treatment) meeting is held in New York City with 20 researchers and clinician experts (half from the U.S. and half international) attend the event.
Averting a second pandemic:
Open Medicine Foundation leads groundbreaking international study of
Long COVID’s conversion to ME/CFS
AGOURA HILLS, CALIF. — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome — to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.
Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”
OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.
The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.
In a significant percentage of patients, infections preceded their development of ME/CFS. For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.
The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS. Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.
About Open Medicine Foundation
Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.
Heather Ah San
Development and Communications Manager