Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

OMF Ambassador Jacqueline Ko Releases First Single to Benefit ME/CFS Research!

#TripleGivingTuesday Ambassador Spotlight

OMF Ambassador Jacqueline Ko Releases First Single to Benefit ME/CFS Research

Multi-award-winning Opera Singer and Canadian Open Medicine Foundation (OMF) Ambassador Jacqueline Ko, long known for her critically acclaimed stage performances, has just released her first single! 

Photo credit: Kathryn Nickford Photography (Instagram: @knickford.photography),
Graphic design: Stephanie Ko (Instagram: @sinistral.scribe). 

Jacqueline, who has ME/CFS, is generously donating 100% of the music proceeds to OMF until the end of 2020! And when you buy the new release anytime between now and December 1, 2020, all purchase proceeds will be tripled as part of our Triple Giving Tuesday campaign — that means your purchase has triple the impact on critical ME/CFS research efforts around the globe!

Aiming to raise awareness for the ME/CFS community through music, Jacqueline’s new release is the classic French opera aria “Elle a fui, la tourterelle” (“She has fled, the turtle dove”) — a beautiful, haunting song performed by a character who has been forbidden to sing due to ill health, but who keeps on singing anyway. 

Recording the song from COVID lockdown, Jacqueline is joined by acclaimed collaborative pianist Maria Hwa Yeong Jung, with support from the BC Arts Council and the Yosef Wosk Family Foundation.

Reviewers can’t get enough of Jacqueline’s award-winning voice:

“Ko knows exactly what to do with an absolutely gorgeous voice” -Review Vancouver

“Touching and fraught with emotion…Her aria “Elle a fui, la tourterelle” had wonderful moments of pathos, and her floated high notes were bright and brilliant” -Schmopera

For Jacqueline, the fight to raise awareness of ME/CFS and funds for research is personal: Both she and her sister Stephanie suffer from ME/CFS. Through her struggle with ME/CFS, Jacqueline has become determined to merge her love of music with advocacy. 

Aside from serving as an OMF Ambassador, Jacqueline is also the co-founder of Opera Mariposa, Canada’s only entirely disability-led and disability-run opera company. Over the past decade, Opera Mariposa’s annual Benefit + Awareness events have raised over $90,000 for ME/CFS treatment, research, education, and patient support.

Her newest single release is yet another amazing example of how Jacqueline selflessly utilizes her musical talent to raise the voices of all those who suffer from ME/CFS and related chronic complex diseases.

Give the gift of hope to all those affected by ME/CFS: Donate any day of the week from now through International Giving Tuesday, December 1, 2020, and your gift will be tripled by generous donors:

It’s with your support that we’re leading critical research and delivering hope for millions. 

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of six prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo