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Voices of ME Blog

Do you have Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (ME/CFS), Long COVID, or a related chronic illness? Share your story today to raise awareness and inspire hope within the community. And don’t forget to read the many uplifting stories of people living with chronic, complex diseases around the globe. 

Erica's
ME/CFS Story

“Although I felt like my body was betraying me, I came to realize that my value as a person is not determined by my activity level or the goals I will never achieve. I now find meaning and value in different ways.”

You have undeniable power.

Share your story

Charlotte's
ME/CFS Story

Sean's
ME/CFS Story

John's
Long Covid Story

Meghan's
ME/CFS Story

Jody's
ME/CFS Story

Leah's
ME/CFS Story

Kim Eggers'
ME/CFS Story

April's
ME/CFS Story

Yas'
ME/CFS Story

Rea's
ME/CFS Story

Michelle's
ME/CFS Story

B's
ME/CFS Story

Jean's
ME/CFS Story

Christian Godbout discusses the history of ME/CFS and the importance of amplifying the voices of individuals with the condition. #PWME

Anna's
ME/CFS Story

Other links you might be interested in:

Information from U.S. Government Agencies
Computational Research Center for Complex Diseases
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Submit Your Story

Your story has undeniable power. By sharing your experiences, you can inspire hope for all those living with ME/CFS and related, multisystem, chronic, complex diseases (msCCD). Whether you are a patient, caregiver, advocate, or healthcare professional, we invite you to submit your story and be part of our OMF Family. Your story may be featured on our social media accounts (@openmedf), digital newsletter, and website.
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Ideas to start your story
  1. How long have you (or the person you are writing about) been ill? 
  2. What was life like prior to chronic illness? (You can describe your career, hobbies, passions, social life, etc.) 
  3. What does daily life look like now?
  4. What gives you the most hope on your bad days?
  5. What is one thing you wish every person would understand about chronic, complex diseases such as ME/CFS? 

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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