Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

Our Vision

Open Medicine Foundation (OMF) envisions improved health care for patients suffering from chronic complex diseases with collaboration between the patients, clinicians, and researchers.

Our Mission

  • Support collaborative medical research to find effective treatments and diagnostic markers for chronic complex diseases with initial focus on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS).
  • Keep the engaged community, clinicians, and researchers informed about OMF research projects and results.
  • Bring together “thought leaders” from around the world to brainstorm and participate in targeted initiatives.
  • Encourage and engage the patient community to take an active role in their health care.
  • Support health care education about chronic complex disease.
  • Advance translational research and information-based research into optimum clinical medicine, including the diagnosis and treatment of these poorly understood diseases and the under-served patients.

 

 

Donate today to advance scientific research. Help us change the game on these diseases!

Our Current Focus

The Open Medicine Foundation is spearheading chronic complex disease research that follows patterns of success and benefits from collaborating with leading scientists and clinicians from around the globe. These experts bring to our foundation their expertise in immunology, virology, genomics, informatics, molecular biology, epidemiology, infectious disease, oncology, pathology, and clinical medicine. The current focus is on ME / CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / systemic exertion intolerance disease), with the expectation that discoveries in this disease will bring answers to other diseases that share some of the symptoms (such as fibromyalgia and chronic Lyme disease).

Our Scientific Advisory Board decides what research strategies will most likely lead to reliable diagnostic biomarkers and treatments. We fund research initiated by our advisory board and research designed by others. Because our director and some of our advisory board and foundation board members are personally touched by the devastation of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS), we are strongly motivated to grab every opportunity for progress so that vitality and the joys of a healthy life are restored to all who presently suffer from these chronic complex diseases. This has led to varied partnerships and collaborations around the globe.

A great research strategy is not enough. To succeed, a foundation must have funding. With optimism and creativity, we are determined to reach our aggressive funding goals, filling a huge gap in the history of these diseases. Appropriate research funding is long overdue in fighting these diseases. Find an update of current studies funded by us. We are convinced that answers are readily available if we apply the best resources in a large-scale concerted effort. We aim to use the right tools with the right people to deliver actionable results.

Please join us in our fight for answers.

 

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

###

About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of six prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo