Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME / CFS) is a life-altering and complex multi-system disease that can present as an array of different symptoms that may change over time and differ from patient to patient. The most common symptoms of ME/CFS are post-exertional malaise, unrefreshing sleep, profound fatigue, cognitive impairment, orthostatic intolerance, and pain.
The cause of ME/CFS is currently unknown, but a combination of genetic and environmental factors appear to be relevant. There are also no diagnostic tests or CIHR approved treatments available.
Not only do symptoms vary in type but also in severity, ranging from mild to severe. An estimated 1 in 4 patients are housebound or bedbound and many of the most severely affected need to be fed by tube.
Currently, there is no laboratory diagnostic test. Due to a symptom set that overlaps with several other diseases, clinical assessment and symptoms and the exclusion of other diseases are necessary for accurate diagnosis.
The current lack of knowledge about the disease is purely a reflection of the lack of research funding.
Today, the landscape of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) research is growing with the outlook brighter than ever.
Join Open Medicine Foundation’s quest to raise funds for research for effective treatments and diagnostic tests for people affected by ME/CFS.