News Blog
Author: Ryan Prior Every morning, I shave, brush my teeth, and swallow a dozen pills. I look in the mirror and thank God I can even walk out the door. Since 2007, I’ve lived with an incurable disease known as chronic fatigue syndrome. Internationally, doctors call it myalgic encephalomyelitis, or ME/CFS. The tongue-twister means “painful...
Author: Llewellyn King For 10 long years, I’ve been writing and broadcasting about Chronic Fatigue Syndrome, now called Myalgic Encephalomyelitis (ME). Like all chronic diseases, it’s brutally unfair to the afflicted. But ME also can claim to have been unfairly treated by doctors and medical researchers, the pharmaceutical giants, and the politicians who control...
Author: Anthea Rowan Twenty million people suffer from myalgic encephalomyelitis, yet there is still no test for it, nor any approved treatment. We talk to a mother whose daughter has the illness, and who has consulted dozens of doctors in search of help Until my friend Caroline introduced me to myalgic encephalomyelitis, or ME, I...
Ben Howell, one of our most dedicated volunteers, recently took the time to record a video message to share with the OMF community. Ben is OMF’s liaison/correspondent on the Phoenix Rising forum, and was also instrumental in setting up the bitcoin donation program that allowed us to receive a $5 million donation from the Pineapple...
(Press Release by CDC) The Centers for Disease Control and Prevention (CDC) today released an updated website for healthcare providers about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Stethoscope Public domain image/Darnyi Zsóka The new site is designed specifically with clinicians in mind and offers information about how physicians can better assess and help their patients manage the illness. CDC’s...
This excellent ME/CFS Alert video by Llewellyn King is an interview with Dr. David Systrom, a key member of our team at the newly OMF funded Harvard ME/CFS Collaborative Center. “Dr. Systrom covers how an interest in exercise intolerance led him to Myalgic Encephalomyelitis. He talks about his work, a new research incubator he has assembled, the testing...
by Cort Johnson The new Harvard research center will focus on a crucial part of ME/CFS – the muscles. In May the Open Medicine Foundation announced they’d committed a major chunk of change – $1.8 million – to fund an ME/CFS Collaborative Research Center at Harvard Medical School affiliated hospitals. With the addition of the Harvard Center, chronic...
We are pleased to share a new research update by OMF’s Scientific Advisory Board Director, Ronald W. Davis, PhD, produced by Ashley Haugen. In this brief video, Dr. Davis talks about his newly funded NIH grant. This grant will fund research for 5 years at $500,000 a year and will involve 15 collaborators, 9 of which have never worked...
Tuesday, July 17 is Ron Davis’ Birthday! Join us to help make his wishes come true! Help Ron bring more researchers into the ME/CFS Collaborative Research Center at Stanford by donating today and inviting your family, friends, and colleagues to join you in supporting this critical research. Donate now and include your personal message. From our Scientific Advisory Board Director:...
For this #OMFScienceWednesday we share Cort Johnson’s article in HealthRising highlighting Dr. Davis and Dr. Bateman’s presentation at the 2018 Brain Science Conference. By Cort Johnson Dynamic Duo It seemed like a dicey thing – a talk on chronic fatigue syndrome (ME/CFS) that seemingly had little to do with the conference. The Brain Science Conference is a...