Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

Ron Davis issues a statement on the NICE guidelines

People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) are urging the National Institute for Health and Care Excellence (NICE) to publish finalized guidelines for ME/CFS that ensure accurate diagnosis, appropriate symptom management, and access to the best support available. However,

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Your powerful stories: #TheViewforME Gallery

Your Powerful Stories: #TheViewforME Gallery On August 8, Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Day, Open Medicine Foundation asked our community to share photos and short bios that capture the reality of life with this complex and devastating disease.

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Jennie Jacques in the news

“Reproduced by kind permission of Sean O’ Neill, The Times, News Licensing” Jennie Jacques on living with ME: ‘I am a shadow of my former self physically’ The Vikings actress’ career was thriving until she developed the debilitating condition, one

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View for ME

The View for MEProject August 2021 In recognition of Severe ME Awareness Day on August 8, 2021, Open Medicine Foundation (OMF) is taking this month to share stories from people living with severe Myalgic Encephalomyelitis​/​Chronic Fatigue Syndrome (ME​/​CFS) to increase

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Last day to give to #MayMomentum!

Last day to give to #MayMomentum! There’s still time to make an impact and accelerate research around the globe —  donate to OMF’s May Momentum campaign today!   All gifts of any amount support urgent biomedical research to find treatments and

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ME/CFS Research Data: the heart of the matter

#MayMomentum research news! ME/CFS Research Data: the heart of the matter With your support, Open Medicine Foundation funds open, collaborative research so that, as soon as possible, precise diagnostic tools and life-changing treatments can be available to people with ME/CFS

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

 

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo