Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

An Interview with Ambassador Jennie Jacques!

An Interview with OMF Ambassador Jennie Jacques Jennie talks chronic illness awareness, “Bake 4 ME/CFS”, & more! Open Medicine Foundation (OMF) is proud to have ambassadors who use their influential voices to call attention to our mission. As part of

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Tea Party for ME: Unique Virtual Opportunity!

For the past nine years, Anna, a wonderful ME/CFS advocate, has been hosting a unique event. Entitled “Tea Party for ME,” this special virtual day brings an international network of people affected by ME/CFS together. As part of OMF’s May Momentum

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Research News! Multi-omics of iCPET Plasma Samples

From the desk of Ronald Tompkins, MD, ScD Co-Director, Harvard ME/CFS Collaboration Research News Multi-omics of iCPET Plasma Samples Preliminary data analysis shows significantly higher levels of cytokines in patients post-exercise compared to healthy controls It’s day four of our #MayMomentum campaign and

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A New $1,000,000 ME/CFS Research Grant!

#MayMomentum 2021 campaign kick-off A new $1,000,000 ME/CFS research grant! Today Open Medicine Foundation launches its fourth annual #MayMomentum campaign to commemorate ME/CFS International Awareness Day on May 12, and honor the millions of lives disrupted by chronic complex diseases.

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May Momentum is right around the corner!

May Momentum is right around the corner! We are thrilled to announce that May Momentum, one of Open Medicine Foundation’s (OMF) largest fundraising campaigns of the year, kicks off on May 1, 2021! In recognition of Myalgic Encephalomyelitis / Chronic

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Sign Up Today! May 1, 2021 OMF Virtual Open House

OMF Virtual Open House Sign up Today! Register If you are able, please consider contributing to our effort to uncover research-based answers. Help us improve the quality of life for all sufferers of ME/CFS and other chronic complex diseases, such as

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New Resource Available for People with ME/CFS

Exciting news! The U.S. ME/CFS Clinician Coalition has released new resources for people with ME/CFS to bring to their health care providers for diagnosis, testing, and treatment recommendations. Read the Coalition Recommendations Announcement here. The resources include a document on

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Exciting Updates from Ronald W. Davis, Ph.D!

From the Desk of Ronald W. Davis, Ph.D.,Chair of Open Medicine Foundation (OMF) Scientific Advisory Board I am honored to share that my research into Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) has been featured by People Magazine! This feature

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

 

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo