People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) are urging the National Institute for Health and Care Excellence (NICE) to publish finalized guidelines for ME/CFS that ensure accurate diagnosis, appropriate symptom management, and access to the best support available. However,
Your Powerful Stories: #TheViewforME Gallery On August 8, Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Day, Open Medicine Foundation asked our community to share photos and short bios that capture the reality of life with this complex and devastating disease.
Updated clinical guidance for myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS), produced by the US ME/CFS Clinician Coalition, may also help patients who remain ill with Long COVID after even mild cases of COVID-19. An article about the update has been
Join us for a webinar and listening session September 2 to learn more! Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the
The story of OMF supporter Martin Den Hollander, a musician living with severe ME/CFS. Despite his health battle, he continues to use his music as a force to help those living with ME/CFS.
OMF is inspired and moved by the creativity and resilience of our community. Throughout 2021, Kristine Oma, dancer, choreographer, and person with ME/CFS, has been creating digital dance performances to benefit ME/CFS research.
In 2017, Rebecca’s life was turned upside down when she came down with an illness that prevented her from leaving her bed and going to work. Soon after, she was diagnosed with ME/CFS. Over the next six months, Rebecca found herself completely confined to bed, sleeping up to 36 hours at a stretch.
Last chance to join the momentum: Support ME/CFS research today! This is the LAST chance for you to support Open Medicine Foundation’s #MayMomentum campaign! All proceeds help advance critically needed research of chronic, complex illnesses. Since our inception, donors from around the
#MayMomentum research news! ME/CFS Research Data: the heart of the matter With your support, Open Medicine Foundation funds open, collaborative research so that, as soon as possible, precise diagnostic tools and life-changing treatments can be available to people with ME/CFS