Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

OMF Ambassadors support our research efforts and are helping build awareness of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) and chronic complex diseases worldwide. OMF Ambassadors are promoting our work through videos and messaging on their social media and websites, personal appearances, and face-to-face interactions with their communities and fans. In addition, they are invited to participate at OMF and OMF-partner events, including our Worldwide Tour, and Community Symposium. Meet our Ambassadors.

JACQUELINE KO
Opera Performer/Producer
Jacqueline Ko, OMF and OMF Canada Ambassador is a multi-award-winning Canadian performer, producer, and disability advocate. She is known for her roles in opera, theatre, musical theatre and film, and is also the founding artistic director of Opera Mariposa, a Vancouver-based performing arts company that showcases opera’s rising stars.
KARIN ALVTEGEN
Author
Karin Alvtegen, OMF Ambassador, is one of Scandinavia’s most widely read and appreciated authors. Karin is recognized for her psychological thrillers, which include Guilt, Missing, Betrayal, Shame, Sacrifice, and Shadow, and has established herself as a celebrated bestseller worldwide, with her books translated into more than 35 languages.
AMY CARLSON
Film and TV Actress
Amy Carlson is an American television actress known for her role in the CBS television series, Blue Bloods, as well as roles in other television series and movies including Third Watch, Landline, Criminal Minds, NCIS, and Law and Order
STUART MURDOCH
Singer & Songwriter
Stuart is the lead singer and songwriter for the band, and he is also a composer, writer, filmmaker, and father. Some of his songs and his films reflect the struggles he has faced with ME / CFS when he became too ill to work or study for seven years.
These songs and his films appeal to a broad audience, as Stuart explains in this video, and demonstrate the compassion and hope he has for the millions of patients desperately wanting a cure so they can once again, begin their lives.
JENNIE JACQUES
Film and TV Actress
Jennie is an accomplished English actress known for many TV and movie roles, including Vikings, a popular historical drama television series currently airing on the History channel, where she plays the role of Saxon Queen Judith.
Jack Emmett
Professional Football Player
At 27 years old, Jack Emmett has pursued a career in professional football (soccer) in England. Having played for the professional Association Football Club Harrogate Town as a midfielder for eight years, he has won two promotions to reach the football league for the first time in the club’s history.

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

 

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo