Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

Frequently Asked Questions

Find answers to the questions we get asked the most about OMF.

General Questions

We appreciate your interest in participating in research. However, our Collaborative Research Centers (CRC) operate independently and recruit their own participants from local clinicians. They are not able to respond to inquiries from the general public.

Should a CRC request outside participants, we will notify the OMF community right away! If you don’t already receive email updates from OMF,  you can sign up here.

OMF cannot provide personalized medical recommendations for doctors. However, we can offer the following helpful resources and will continue to share reliable, verified information, as it is made available.

OMF is working hard behind the scenes to educate new and existing healthcare providers across the globe through our Medical Education Resource Center (MERC) in partnership with Bateman Horne Center.  Learn more about the MERC and access patient resources.

Our goal is to empower you to take care of your health today, while we search for answers for tomorrow:

OMF does not offer patient services. Our primary focus is raising funds for research and medical education – a gap that we must urgently fill.

However, we can offer the following helpful resources and will continue to share reliable, verified information as it is made available. Our goal is to empower you to take care of your health today, while we search for answers for tomorrow.

We share your eagerness to find a diagnostic test, treatment, and cure, but we can’t predict when this will happen. OMF is fortunate to have an incredibly dedicated collaborative network of researchers who are working as hard as they can to find the answers we are all seeking as fast as possible.

We are very encouraged by the progress they are making at all six of our Collaborative Research Centers. Learn more about our progress by joining the OMF Community. Sign up for our email updates or follow us on social media: 

Due to the high demand of requests, OMF cannot promote personal fundraisers for medical expenses at this time.

OMF is not authorized to review or comment on personal medical information. We are not directly involved in the research process. Our role is to ensure that each Collaborative Research Center has the financial resources required to run OMF funded studies.

If OMF seeks participants in any data gathering research project, we will email those requests to our database. If you don’t already receive email updates from OMF, you can sign up here.

Please email info@omf.ngo with your name and preferred contact information. We will forward your information, and a team member will get in touch if they are interested.

OMF relies on the expertise of our Scientific Advisory Board, the ME/CFS Clinical Coalition (a group of some of the most experienced ME/CFS doctors in the country), and our Research Directors at our six Collaborative Research Centers to recommend and choose our research projects. We are currently focused on finding a biomarker, diagnostic tool, and effective treatments for ME/CFS, Long COVID, and related multi-system chronic complex diseases (msCCD).  

Learn more about current OMF funded research projects here.

Thank you for your offer to share information with us. If you have materials related to our current projects or research, you can send them to omf@omf.ngo. Please put “Research Ideas” in the subject line. A team member will review and forward as appropriate.

Currently, OMF is using volunteers for administrative functions on a seasonal basis. 

Questions Regarding Donations to OMF

Thank you for your interest in supporting our mission! You can send a check via mail by making the check payable to “Open Medicine Foundation.”

Address:

Open Medicine Foundation
29302 Laro Drive
Agoura Hills, CA 91301, USA.

For more information about different ways to donate to our mission, please click here.

Thank you for joining us in our mission to fast-track critical research into Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) by starting your own fundraiser!

We recommend taking a look at our digital fundraising toolkit: http://bit.ly/FundraiseToolkit. The toolkit contains simple, easy-to-use guides for launching fundraisers on Facebook and CrowdChange, or in-person events. It includes downloadable templates to help spread the word on social media or email.

OMF has partnered with MAECENATA STIFTUNG TRANSNATIONAL GIVING to accept donations in the countries listed below and issue tax receipts. Please note that donations made through Maecenata are paid to OMF on a quarterly basis. We will send you an acknowledgement once we have received your gift.

  • Belgium
  • France
  • Germany
  • Spain
  • United Kingdom

To learn more, visit the International Donations page on our website.

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

What are the advantages of giving from your Donor Advised Fund (DAF)?

  • Your gifts to your donor advised fund entitle you to an immediate income tax deduction at the time of contribution.
  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
  • Your fund’s investment gains accumulate tax free.
  • Funds are distributed to Open Medicine Foundation in your name and immediately put to use to support our worldwide research efforts.

How do I make a donation through my DAF?

Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

Still can’t find your fund? 

  • Request a grant distribution through your Donor Advised Fund sponsor
  • Be sure to use OMF’s EIN #26-4712664
  • You can also designate OMF as a beneficiary for your Donor Advised Fund
  • Questions? Give us a call at 650-242-8669