Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid




Whether you’re celebrating your birthday, selling lemonade, or honoring a loved one, it takes only minutes to start your own fundraising page to raise funds to FAST-TRACK URGENT RESEARCH to find a cure for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME / CFS) and related multisystem chronic, complex diseases.


Join OMF each year in raising awareness and money for ME / CFS research by participating in our two major fundraising campaigns or starting your own birthday or focus fundraisers!


Fundraising Dates
October 19 – November 30, 2021
Campaign Website

#TripleGivingTuesdayOMF is an exciting opportunity to triple your impact on groundbreaking biomedical research into ME / CFS and related multisystem chronic, complex related diseases.

Every donation made to OMF any day of the week until International Giving Tuesday on will be triple matched.

Regardless of how you donate, when you donate, or where you donate, your gift will be triple matched, every day of the week!

How can YOU help?

Spread the word about OMF’s mission and #TripleTuesdayOMF. Simply download our email template or social media templates and share them with family and friends!

Use our #TripleTuesdayOMF social media toolkit which provides sample posts and images to let your followers know about #TripleTuesdayOMF and why you support our mission to #EndMECFS. Tag @Open Medicine Foundation on Facebook and @OpenMedF on Twitter and Instagram when you post.

Post stories on Instagram about why you support OMF. Don’t forget to use the ‘donation sticker’ feature to select OMF as the organization you would like to support!

Use OMF’s #TripleTuesday Facebook profile picture frame to show your support of OMF’s campaign.

Add a ‘donate button’ to your Facebook posts about #TripleTuesdayOMF

You can create a Crowdchange fundraiser or set up a Facebook Fundraiser and ask your followers to donate there. Let your followers know that the triple match will apply to every donation received! Use our step-by-step instructions for how to set up your Crowdchange or Facebook fundraiser.  Here are some simple steps to help you make sure your fundraiser gets the most possible donations.

Be sure to thank your donors when they give to your Facebook or Crowdchange campaign! You can simply copy and paste this text:

Thank you for your gift to OMF! Your donation has been tripled! Through your donation, OMF is able to accelerate research into ME/CFS and continue working towards the goal of ending this disease.

Fundraising Dates
May 1 – May 31
Campaign Website

How you can help us build momentum:

Create a Facebook fundraiser for OMF starting May 1 and ending May 31. (You can set the goal for whichever amount you chose.) Use our social and email templates below to set up your fundraiser in no time!  Here are some simple steps to help you make sure your fundraiser gets the most possible donations. Click here to launch.

Donate to your campaign and invite your friends and family to join you! Click the “invite” button on your fundraiser to invite your Facebook friends directly.

Help us circulate our news and updates by sharing, re-posting, and re-tweeting our #MayMomentum posts on your personal social media platforms. Use our social media toolkit.” 

Add a temporary OMF #MayMomentum Facebook frame to your profile picture

Record a short video about why you support OMF

Don’t forget to use the hashtag #MayMomentum on all your posts!


Come celebrate your birthday (or any special occasion) with OMF by inviting others to make a donation in your honor. We encourage you to set an ambitious fundraising goal and invite your friends and family to support you.

You can use this link to set up a birthday fundraiser on Facebook in as little as 60 seconds: 

Make sure to let your followers know that “Facebook will cover all processing fees so 100% of the donated funds go to OMF — it’s an easy and effective way to support groundbreaking ME / CFS research.”

CrowdChange fundraising pages are easy to set up and a fun way to share your passion and commitment to OMF with your fanbase. You can set up a CrowdChange page from anywhere in the world — you don’t have to be within the US. Follow our step-by-step CrowdChange instructions to help create your page.

Make sure you let your followers know that “All donations made through CrowdChange will go directly to OMF. We’ll thank your supporters and send them a receipt acknowledging their tax-deductible donation. CrowdChange has generously donated the use of their platform to OMF in support of our research program and does not charge OMF any administrative fees.”

Be sure to share your birthdate with us so we can post a feature on our blog & social media pages! We will also make sure to strategically promote your birthday fundraiser throughout your birthday month.


Launch a focus fundraiser based on your unique skill sets, passions, interests, or hobbies.

OMF Ambassador Jennie Jacques has chosen baking as a hobby to build a focus fundraiser around. She launched ‘Bake 4 ME/CFS’ to help raise funds and awareness for OMF. View her website for inspiration and examples: www.Bake4MECFS.com

OMF Ambassador Karin Alvtegan created a writing competition as a focus fundraiser unique to her skillset! Check out her promo:

Introducing “Write for ME,” a writing competition launched by OMF Ambassador Karin Alvtegan! Karin invites you to write a poem or short story that represents your experience with ME/CFS. Three winners will be chosen by Karin and featured on OMF’s website and social media accounts. Karin has requested an entry fee of $5 for each written story. 100 percent of proceeds will be donated to OMF.


Are you a Twitch streamer? If so, you can use your live stream as a powerful platform to raise money for research! OMF is excited to share that we are now a registered charity on Streamlabs Charity!

how to get started

Streamlabs Charity is a new platform that simplifies the process of live streaming for a charity via Twitch, Youtube, or Facebook. Streamlabs Charity also has no service fees, so 100 percent of your donations go directly to OMF!

How to start your first live stream fundraiser for OMF on Twitch, using Streamlabs Charity:

  1. Follow this link
  2. Create your account with Streamlabs Charity. (You can also sign up with your Facebook, Twitch, or Youtube account.)
  3. Next, customize your fundraiser campaign for OMF: Here you can write a description, set your fundraising dates, and donation goal amount
  4. Once your campaign is published, you can now set up stream alerts for your charity donations. You can also get a donation goal bar as a stream overlay that shows the progress you’ve made towards your fundraising goal!

For more information, you can watch this easy step-by-step video tutorial on how to start a charity live stream using Streamlabs. 

Thank you for all the creative ways in which you help us to advance our mission to end ME/CFS and related multisystem chronic, complex diseases.

Read more


Simply copy and paste this email template into the body of an email, fill in what campaign you’re raising money for and why, and send to your friends and family!

SUBJECT LINE: Please support my [CAMPAIGN NAME] fundraiser for Open Medicine Foundation

Hello friends and family,

I’m raising money for Open Medicine Foundation, a nonprofit organization dedicated to improving health care for patients suffering from multisystem chronic, complex diseases like ME / CFS


Please consider supporting my fundraiser between now and [END DATE] by donating whatever you can through my personal fundraising page [link to your page here].

Every amount helps! If you’re unable to donate at this time but want to help, please consider sharing my fundraiser with your friends and family.

Thank you so much for your support!




Share these sample posts along with a link to our website or your own personal fundraiser on Facebook, Twitter or Instagram. Download and share our sample photos below. And don’t forget to tag us!

Crowdfunding Campaign Announcement Sample Text

Family and Friends! I’m raising money for Open Medicine Foundation, a nonprofit close to my heart because they are the single largest foundation spearheading the research of multisystem chronic, complex diseases like Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. [Optional: Write one sentence about why OMF’s mission matters to you]. If you are able, please donate today and share this post to help me reach my [$XXXX] goal by [DATE]!

Crowdfunding Campaign Update Sample Text

Just [#] days left to support my fundraiser for Open Medicine Foundation! Any amount helps advance research into devastatingly underfunded chronic, complex diseases like ME / CFS. Thank you so much for your support! [LINK TO FUNDRAISING PAGE].

Crowdfunding Campaign Last Chance to Donate Sample Text

Hi Friends and Family! I’m only [$XXX] away from reaching my fundraising goal for Open Medicine Foundation, a nonprofit leading research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome and relatedchronic, complex diseases. [Optional: Write 1 sentence about why this mission is important to you]. Please give in these last [#] hours if you can: [LINK]


Click on an image to download


Invite your friends directly

In addition to sharing your fundraiser to your social pages, try sending a direct invitation on Facebook to your friends and family to make a contribution to your fundraiser. Simply visit your Facebook fundraiser page and look for the invite feature.

Publish a personal video

Tell your friends and family in your own voice why OMF’s mission matters to you! Post it to your social feed and story, email it to your contacts or text it to your loved ones with a link to your fundraiser!

Make it personal

Get personal with your network: Why does OMF matter to you? Help your friends and family understand just how important the mission of OMF is, and what it means to you when they donate to your fundraiser!

Fundraise IRL

Want to kick your fundraising for OMF up a notch? Check out our ideas for ways you can raise money IRL and spread awareness for ME / CFS research beyond your digital network!

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

What are the advantages of giving from your Donor Advised Fund (DAF)?

  • Your gifts to your donor advised fund entitle you to an immediate income tax deduction at the time of contribution.
  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
  • Your fund’s investment gains accumulate tax free.
  • Funds are distributed to Open Medicine Foundation in your name and immediately put to use to support our worldwide research efforts.

How do I make a donation through my DAF?

Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

Still can’t find your fund? 

  • Request a grant distribution through your Donor Advised Fund sponsor
  • Be sure to use OMF’s EIN #26-4712664
  • You can also designate OMF as a beneficiary for your Donor Advised Fund
  • Questions? Give us a call at 650-242-8669 

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.


In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.


The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.


About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of six prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.


Heather Ah San

Development and Communications Manager