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ME/CFS and related chronic complex diseases

Sharing “Even Though” in Poetry Slam

“Keeping the Hope” Song Release

A NEW SONG INSPIRED BY THE HOPE & HEART UNITE FOR ME/CFS POETRY & ART SLAM Laurie Glass’s poem, “Even Though,” selected from the 2019 Hope and Heart Unite for ME/CFS Poetry & Art Slam, was interpreted by singer/songwriters Maxwell Elefant and 95North. OMF and Lev Leytzan are thrilled with the melody these young composers...

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Fereshteh Jahanbani’s #MayMomentum Story: The Journey of an ME/CFS Researcher

In August of 2012, I began a remarkable journey, one from which I learned more than I ever could have imagined possible. It was just two months after I joined Mike Snyder’s team, the chair of Genetics and the Director of the Center of Genomics and Personalized Medicine at Stanford University. I met with so...

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Poetry & Art Slam Builds Awareness of ME/CFS

Open Medicine Foundation Community Inspires Hope May 21, 2019 (Los Angeles, CA) – In 2012, two forces changed lives. Laurie Glass, of Wisconsin, became chronically ill and housebound from myalgic encephalomyelitis/chronic fatigue syndrome (often referred to as ME/CFS). Laurie had been an active and busy person whose illness now confines her to the couch much...

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CNN: He pioneered technology that fueled the Human Genome Project. Now his greatest challenge is curing his own son

By Ryan Prior. Photographs by Rachel Bujalski for CNN. (CNN)Multiple times a day, every day, Ron Davis sits with his head bowed, waiting outside his son’s bedroom for a subtle signal that it’s all right to come in. He opens the door to the space where Whitney has spent most of the last decade. Whitney...

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What is ME/CFS: A video montage of patients around the world

The photos we received for Share in Times Square tell the story of how ME/CFS affects patients and their families. Today, these images are in the spotlight as a part of International Awareness Day and May Momentum. Hundreds of thousands of people will walk through Times Square in New York City and see the images...

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Sharing “Even Though” in Poetry Slam

Hope & Heart Unite for ME/CFS presents the 2019 selected poem, “Even Though” by Laurie Glass, and selections of the beautiful artwork that was submitted, in a video. The OMF community’s response to OMF and Lev Leytzan’s Hope and Heart Unite for ME/CFS Poetry and Art Slam was incredible! People in 17 countries submitted more than 130 entries and...

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