Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

$4.5M raised in 2020: Your Donations at Work!

Thank you for being a part of the Open Medicine Foundation (OMF) family. We are honored by your trust in our efforts to end ME/CFS and related chronic, complex diseases. 

The following accomplishments from 2020 are possible because of you, your support of our work, and your dedication to our shared vision of a world free from chronic complex diseases. 

Thanks to the generosity, time, and effort of OMF’s community, we are pleased to share that we raised over $4.5 million USD in 2020! And our work isn’t over — we’re continuing to fund this urgent research in 2021. OMF is grateful beyond words to our amazing family of supporters who make this work possible.  

With hope for all,



Linda Tannenbaum
Founder & CEO/President

ME/CFS Collaborative Research Center Updates

Thanks to our supporters, we were able to help advance groundbreaking research in 2020 at the five OMF funded collaborative research centers across the globe.

We Welcomed Two New Research Centers in Australia and Canada

The Melbourne ME/CFS Collaboration, led by Christopher Armstrong, PhD, in partnership with Australian nonprofit Emerge Australia.

  • Initial research will focus on an innovative program to develop a personalized research approach for studying ME/CFS.

The ME/CFS Collaborative Research Center at CHU Sainte-Justine/Université de Montréal, led by Alain Moreau, PhD.

Current studies include:

We are Funding a Study of Covid-19 Patients Transitioning to ME/CFS

In early 2020, OMF scientific leadership anticipated that many COVID-19 patients were at high risk for developing ME/CFS, offering an unprecedented opportunity to understand how ME/CFS develops.

An anonymous $1 million grant was awarded to study the difference between COVID-19 positive patients that return to good health and those that end up with ME/CFS, which could, in turn, reveal biomarkers and treatment interventions.

Collaborative research will be conducted at OMF funded research centers.

Keep an eye out for our next eblast where we’ll share more details about this groundbreaking study!

Our Research Efforts Brought ME/CFS into the National Spotlight
OMF Funded Research Centers Continued to Make Progress Toward Our Mission To End ME/CFS and Other Chronic, Complex Diseases

Our Shared Community in Action

The accomplishments and advancements of 2020 wouldn’t have been possible without our generous family of supporters and advocates. Throughout 2020, as the world grappled with the COVID-19 crisis, our community continued to raise funds and awareness for people suffering from chronic complex diseases. Your passion and dedication for finding treatments and a cure continues to inspire us — in 2020 alone, you:

  •  Raised awareness for those living with severe ME/CFS by bravely sharing your own stories:
  • Walked, ran, and biked miles — even across the country! — for your loved ones suffering from chronic illness
  • Inspired the world with your music and art to shed light on these devastating diseases
  • Made the world a little sweeter by baking for ME
  • Selflessly gave back during birthday celebrations, the holidays, and more to help raise money for critical OMF funded research — giving the gift of hope to millions

In 2020, these fundraising efforts by individuals raised over $270,000 USD through Facebook and Personal Fundraisers! From all of us at OMF, please accept our heartfelt thanks for all you do to help accelerate research and deliver hope.

Open Medicine Foundation is proud to have been recognized in 2020 by Great Nonprofits, to have received a Platinum level recognition from GuideStar for our commitment to organizational transparency, and a score of “100 Encompass Rating” from Charity Navigator in Finance & Accountability.

guidestart platinum larger

If you are able, please consider contributing to our effort to 
uncover research-based answers.

Help us improve the quality of life for all sufferers of ME/CFS and other 
chronic complex diseases, such as Post Treatment Lyme Disease Syndrome 
and Fibromyalgia.

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

What are the advantages of giving from your Donor Advised Fund (DAF)?

  • Your gifts to your donor advised fund entitle you to an immediate income tax deduction at the time of contribution.
  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
  • Your fund’s investment gains accumulate tax free.
  • Funds are distributed to Open Medicine Foundation in your name and immediately put to use to support our worldwide research efforts.

How do I make a donation through my DAF?

Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

Still can’t find your fund? 

  • Request a grant distribution through your Donor Advised Fund sponsor
  • Be sure to use OMF’s EIN #26-4712664
  • You can also designate OMF as a beneficiary for your Donor Advised Fund
  • Questions? Give us a call at 650-242-8669 

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.


In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.


The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.


About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of six prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.


Heather Ah San

Development and Communications Manager