Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

Interagency ME / CFS Working Group Meeting 8/11/2020

“Our obligation to the millions suffering worldwide is to provide data-driven information. OMF recognizes this a critical moment in ME/CFS research, with the potential to galvanize efforts to effectively treat and prevent ME/CFS and other related Chronic Complex Diseases.”  

Linda Tannenbaum, OMF CEO & Founder/President,
speaking at the Interagency ME/CFS Working Group Meeting.

Open Medicine Foundations’ ME/CFS and COVID-19 research project was brought into national focus at a recent, federally-sponsored meeting of the first-ever virtual Interagency ME/CFS Working Group Meeting.

This first meeting of the new Working Group focused on ME/CFS and those suffering from post-COVID-19 symptoms (aka “long-haulers”). 

This meeting, unique in its scope, was the first time that representatives of multiple federal research programs met collectively with three leading ME/CFS focused nonprofits, OMF, Solve ME/CFS Initiative and #MEAction. 

Hosted by the NIH and the CDC, representatives of federal research programs included:

  • Three branches of the NIH
  • Three branches of the CDC including the Domestic COVID Response Program 
  • Department of Defense: CDMRP
  • Veterans Administration: Gulf War Research Program 
  • Department of Education: Office of Special Education Programs 
  • Social Security Disability Office 

OMF’s CEO & Founder /President Linda Tannenbaum and OMF’s Chief Medical Officer Ron Tompkins provided an update on the  OMF-funded study on COVID-19’s possible conversion to ME/CFS. The presentation can be viewed here.

OMF looks for every opportunity to accelerate research.  The study will examine individuals from early severe COVID-19 illness through their recovery and rehabilitation phase, offering an unprecedented chance to identify biomarkers and discover drug targets and prevention strategies for ME/CFS.

View the slides from the presentation here.

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