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ME/CFS and related chronic complex diseases

Worldwide Tour Blog


Dream. Believe. Do It . . . Join Team OMF in Hope

End ME/CFS Worldwide Tour impressions after a unique event in Italy

“My heroes, the fighting patients, parents & caregivers.” Dear Friends, We arrived Thursday, June 7, on our last stop of our End ME/CFS Worldwide Tour in Zanè, a town in the province of Vicenza, Veneto, Italy. We were welcomed with a lovely dinner we shared with Giada Da Ros, President of the CFS Italian Association, Paolo...

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Meeting New and Old Friends in the Netherlands

Dear Friends, After London, Don and I traveled on June 2 to the Netherlands (Utrecht), our second stop on our OMF End ME/CFS Worldwide Tour 2018 and our first visit to this beautiful country with so many bikes everywhere! We couldn’t wait to finally meet with old and especially new Dutch friends, some of them...

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Meeting Friends and Collaborators at IIMEC13 in London

Dear Friends, My husband Don and I left California on May 28 to embark for Europe again on our second annual OMF End ME/CFS Worldwide Tour, to discuss research, bring updates, share hope, ideas, and raise awareness. Being parents of a sick daughter, we are well aware of how important hope is for all of...

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A Glimpse into Dr. Ron Davis’ Talk in London

Dear Friends, I prepared this statement for Ashley Haugen to read yesterday at the Western Massachusetts Department of Public Health screening of Unrest. This is new information from the Severely ill Patient Study (SIPS) that I also presented in London: “We have made considerable progress in analyzing the data from the severely ill patient study. This has taken some time because we have...

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Greetings from London

Dear Friends, I am excited to share with you that this week I am attending the Biomedical Research into ME Colloquium 8 (BRMEC8) with six members of OMF’s Scientific Advisory Board. Our delegation is spending quality time together. (Pictured below: L to R: me, Dr. Øystein Fluge, Dr. Jonas Bergquist, Dr. Ron Davis, Dr. Maureen Hanson, Dr. Wenzhong Xiao,...

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Continuing The Worldwide Tour to Spread Hope Around the U.S.

Dear Friends, After my European Tour of Hope in May/June, I continued this fall in the USA and that has left me at the end of this year with wonderful long lasting impressions! The last months offered me many occasions to interact again with patients, parents, support groups and patient leaders, not only to inform them about...

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Message from Linda: “What I learned From My European Tour of Hope”

Dear ME/CFS friends, I just finished my European Tour of Hope and arrived back home. The last month I have been travelling through 6 European countries and had dozens of lectures and meetings with patients, parents, government officials and doctors. I have learned a lot and was humbled and acutely aware of the very important...

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Reunited With My Swedish Friends (OMF Sweden): June 19 & 20

On Monday June 19th, I arrived in Stockholm for the second part of my Swedish visit. I was welcomed by our friends at RME, Kerstin Heiling, Hendrik Fransson and Jenny Lundgren. They organized and hosted a talk with about 30 people, including many parents. At the event, I met Susanne Froroth, also from RME. I...

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RME Sweden Shares Blog Post on Worldwide Tour Visit

(Blog Post translated by Google Translate and shared with permission from the RME website.) Member meeting in Borås, part 1-Visit by Linda Tannenbaum from Open Medicine Foundation Camilla Gillberg, RME Sweden’s Secretary, reports from Member meeting held in Boras on Sunday, and also tells us when she met Linda Tannenbaum for the first time: For 3.5 years ago, in October...

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Reunited with My Swedish Friends (OMF Sweden): June 17-20

Traveling is an adventure. Yesterday after a flight and two trains, I arrived in Gothenburg 11 1/2 hours after I left my hotel in Bergen, Norway. I certainly saw some beautiful sights along the way (picture: view from the train)! Erik and Lena Nilsson kindly made all the arrangements for my visit. They picked me...

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