Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

In the News: OMF Funded Study on COVID-19

In case you missed it, OMF & the OMF-funded study on COVID-19 and ME / CFS have recently been featured in Vox and The Washington Post.

Other news sources, such as The Atlantic & Health Affairs, have also highlighted the risk of COVID-19 causing debilitating long-term fatigue after patients recover from the acute phase of their disease, identifying the novel virus as a possible trigger for ME / CFS.

In doing so, Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS), a hidden and often misunderstood illness, has been brought directly into the spotlight.

In response to this pressing concern, U.S. Congressman Jamie Raskin introduced new legislation that would expand NIH funding to address post-viral diseases, including ME / CFS in the wake of the COVID-19 pandemic.

In his press release, Raskin states, “We cannot let the number of ME / CFS cases rise due to a lack of research & understanding. As we battle COVID-19, this critical legislation will help us respond to the ME / CFS hidden health crisis.”

The underlying message of the new articles & legislation is the same: We must take immediate action by driving critical research into COVID-19’s sequela so we can ascertain whether COVID-19 converts to ME / CFS, carefully studying the molecular transformation if it occurs.

OMF is proud to be supporting an effort to understand this possible transformation with a multi-year collaborative project to unlock the triggering mechanisms of ME / CFS revealed through the study of post-COVID-19 patients.

The world is now intensely focused on COVID-19 & the consequential risk of ME / CFS. OMF remains committed to using this pandemic as a window of opportunity to gain better understanding of ME / CFS so we may find treatments & a cure for millions suffering from this disease, and the many more who may develop it in the aftermath of COVID-19.

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of six prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo