Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

Actress Jennie Jacques Becomes OMF’s Newest Ambassador

BREAKING NEWS We are thrilled to announce actress Jennie Jacques as OMF’s newest Celebrity Ambassador!  Jennie is an accomplished English actress known for many TV and movie roles, including Vikings, a popular historical drama television series currently airing on the History channel, where she plays the role of Saxon Queen Judith. Aside from her career as a talented actress, Jennie is dedicated to advocating for those living with devastating chronic illnesses such as Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS). Through the use of her social media platforms, Jennie frequently speaks out on behalf of all those who are suffering in silence. With her large fan base of followers, Jennie has the unique ability to bring ME/CFS to the forefront, sparking meaningful conversations and helping to drive more funding for critical OMF funded research into ME/CFS. Jennie explains in her own words, why her new role as an OMF Ambassador is of significance to the entire ME/CFS community: “I have a keen interest in the science behind ME/CFS. I am in awe of the stellar Scientific Advisory Board working for OMF. As an OMF Ambassador I hope to come up with creative ways to engage with researchers and ultimately use my platform to raise awareness and further educate people. The illness is severely under-represented, and I am honoured to be a relatable public voice. I find myself productively looking up medical jargon after delving into videos, interviews, and seminars on ME/CFS; I hope, as an OMF Ambassador, to relay such information in a way which enables a person without the scientific vocabulary to better comprehend. I am excited to collaborate with OMF and I look forward to building our relationship and moreover, finding a cure.” We share this excitement in welcoming Jennie to Team OMF, and we sincerely thank her for her dedication to raising awareness. Her willingness to publicly advocate for the millions suffering from ME/CFS and other chronic, complex diseases, serves to help attract the resources required to fight this battle.

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

 

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo