I have a very exciting breakthrough to share with you as a result of our tour of hope and visit to Northern Ireland Dr. Ian Clements, Chairperson of the Health and Social Care Board has confirmed that ALL 365 General Practitioner (GP) practices in Northern Ireland will receive new updated information on ME/CFS and fibromyalgia, including biomedical research, that confirms the very physical nature of these diseases. They expect this information to be distributed within a maximum of 8 weeks after further negotiations with the commissioners and Public Health Agency. This news comes from our friends and supporters from the Hope 4 ME & FM Support group and Mr. Iain DeBoys, Commissioner for ME and Fibromyalgia (a committee of Health and Social Care Board).
Hope 4 ME & Fibro NI has shared the following message of hope: “Hope 4 ME & Fibro Northern Ireland, has been bringing world experts and researchers from around the world to N.I. since 2011 to educate decision makers. Effectively it has taken six years to bring us to this welcome and much needed move by the Department of Health. We again thank this year’s speakers at our ‘Seeking Solutions for ME and Fibromyalgia’ conference, Dr. Mella, Linda Tannenbaum, David Tuller, Dr. W. Weir, Dr. Christine McMaster and the others before them.”
The Hope 4 ME and Fibro groups are compiling a detailed report on the presentations at their recent ‘Seeking Solutions for ME and Fibromyalgia’ educational event, held in Stormont government headquarters, Belfast, May 30th 2017.
On behalf of OMF, I would like to congratulate the Hope 4 ME & Fibro group in Northern Ireland for their excellent work in accomplishing this! Thank you again for a wonderful invitation and welcome to join these great experts in your recent conferences.
It is so exciting to see the increased awareness being translated into better healthcare policies for ME/CFS patients and caregivers!