Our ME / CFS Scientific Advisory Board director’s scientific accomplishments and personal story is attracting national news media attention. The Washington Post is the latest to publish a story exposing the irony that an innovate geneticist is dealing with a scientific mystery in his own house.
Whitney Dafoe, Davis’s son, suffers from a severe form of ME / CFS, Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. After traveling the world while building his photography portfolio and winning professional awards, Whitney’s story changed drastically, a story many ME / CFS patients know all too well.
Our foundation’s End ME / CFS Project is a research plan developed by Dr. Davis and other world-renown scientists on our ME / CFS Scientific Advisory Board. Phase I, the ME / CFS Severely Ill-BIG DATA Study, is now underway.
Miriam Tucker, the reporter for this story, is a freelance medical journalist. She has attended health agency committee meetings about ME / CFS, and her articles are often seen in Medscape. She’s very open about her own experience with diabetes, which we can assume influenced her interest in medical journalism.