Team OMF Events

Walk for ME – Netherlands

Posted on: October 17, 2017

René Robert is planning to participate in the International Four Days Marches Nijmegen walk, beginning July 16, 2018. He will walk 50 km (31.25 miles) per day for four days in memory of his niece, Denise de Hoop, who passed away at the age of 45 from ME/CFS after suffering for more than 30 years….

Community Coming Together in Honor of Tom

Posted on: September 8, 2017

OMF Volunteer Ambassador, Elizabeth Hillis, is continually looking for ways to raise awareness and fundraise to support OMF’s research. Elizabeth is a long-time friend of Mark and Dottie Camenzind and has watched their son, Tom, grow up alongside her own children. Elizabeth is steadfast in her commitment to help Tom and all patients around the world….

Planting Seeds for Hope

Posted on: September 5, 2017

Clare Stiles (UK) used something she loves as a way to support OMF. Clare planted seeds to grow flowers and vegetable plants in her garden. She then held a plant sale. She invited her friends and family to donate their young plants too. From her garden raising plants, she is also raising hope around the world. Clare’s plant sale raised…

Knoxville Bridge Center goes DOUBLE PLATINUM while celebrating & fundraising

Posted on: August 14, 2017

By David Shepler, Knoxville Association of Bridge Clubs (Thank you to Cindy Siegel Shepler & David Shepler for your tireless efforts to support Team OMF.) A Double Platinum celebration for Pat Jankovic’s Platinum Life Master milestone was hosted by her friends on Saturday, August 12th, at the Knoxville Bridge Center, while fundraising for a Platinum-rated…

A Bike Ride & A Walk To Raise Funds & Awareness – One Father’s Brilliant Efforts

Posted on: August 10, 2017

Jerry Clark from Wadebridge, UK, has embarked on a challenge to raise funds in support of OMF’s ME/CFS research. He has already completed a series of cycling challenges around the South West and is now well into his challenge to walk the Cornish coast path. Jerry is personally motivated to raise funds and bring awareness to this…

ME/CFS Stomp for Amelie Hicks

Posted on: July 20, 2017

Jordana and Pete Gingrass are running a half marathon in Arvada, Colorado on September 8, 2017 in an effort to raise money, awareness and support for one of their dearest and oldest friends, Amelie Hicks. Amelie suffers with ME/CFS, along with her mother and sister. Amelie has had to stop working in the career she loved…

A Dad Celebrates His Birthday With Hope

Posted on: June 28, 2017

For his birthday, Lou Corsius (Netherlands) invited his family and friends to donate to OMF in lieu of presents. ME/CFS research is the greatest gift to the parent of a severely ill child. Now 26, his daughter Céline has suffered from ME/CFS since the age of 11. Lou shared with OMF that for his birthday he hopes…

Cards4ufromME Severe ME-patient Lieke Kops

Posted on: June 26, 2017

Lieke Kops in the Netherlands has a passion for photography and then she was struck by severe ME (read her personal story). Now she’s selling postcards of which 40% of the revenues are donated to the End ME/CFS-project – Dragonfly postcards Lieke writes: Welcome to my shop!  I am Lieke Kops from the Netherlands and…

Ribbons Become A Family Affair

Posted on: June 15, 2017

Thank you to OMF friend and support, Eimear (Ireland) who created her own fundraising campaign to support the #EndMECFS project. Together with her adorable children, Aida, Maebh and Liam, they have been busy inviting family, friends, work colleagues and neighbours to donate throughout the month of May. Every donor received a blue ribbon to End…

Parents’ Don & Betsy Gemmecke prepare to walk across England to raise money for OMF’s research

Posted on: May 23, 2017

Update June 23, 2017  Don & Betsy completed their 200 mile walk, coast to coast across England.         Update June 2, 2017 Don & Betsy are four days into their journey. They are doing great and look great. They have shared this latest picture.     _____ Soon Don and Betsy Gemmecke are…

The Conway Daily Sun: Letter to the Editor: Support finding a cure for chronic fatigue (Betsy Gemmecke raises awareness)

Posted on: May 23, 2017

To the editor: Today is the 25th anniversary of the International Awareness Day for Chronic Immunological and Neurological Diseases, which includes myalgic encephalomyelitis/chronic fatique syndrome, fibromyalgia and chronic Lyme disease. I wanted people to be aware of the debilitating nature of this disease which has no known onset or cure. As many people know, my…

Family of Netherlands Patient Raises Money and Awareness for ME/CFS

Posted on: April 26, 2017

Team OMF hero, Kelly Handjes of the Netherlands, gathered a group of family, neighbors and friends to support OMF. This special event was organized in honor of Bente Kubin, who is suffering from severe ME/CFS. Surrounded by family and friends, the event was emotional, fun, heartwarming and meaningful. Bente’s mom and sister explained what ME/CFS…

Help Nick Find a Way out of ME/CFS: a Bar Mitzvah Helps Raise Research Funds

Posted on: April 23, 2017

Awesome 13-year-old Brent Gelick, one of our younger Team OMF heros, set a goal to raise $500 for his Bar Mitzvah project in honor of his friend Nick who suffers from ME/CFS. With the encouragement and support of his caring mother Dana, Brent has exceeded his goal raising over $1,000! We are grateful to Brent,…

A Woman’s Month Highlight: A Play Raises ME/CFS Research Funds

Posted on: April 19, 2017

In March 2017, Team OMF Hero, ME activist and theater director Bobbi Ausubel, age 80, produced the play Bold Women, Brazen Acts as a fundraiser for OMF. Co-written by Bobbi and ME activist Rivka Solomon, the play is a collection of true stories of women’s courageous and daring deeds. Especially exciting, Bobbi’s sold out performances,…

Fisch for a Cure: a Toronto ME/CFS Music Event

Posted on: March 23, 2017

A dynamic group of passionate friends are hosting Fisch for a Cure, a fundraiser to honor of patient and Team OMF hero Ryan Fisch in Toronto, Canada on Saturday, April 1. The event is being held at the Steam Whistle Brewery and will include a live band, dj, open bar, and tons of fun. If…

Power of 1: How a 9-Year-Old Raised ME/CFS Research Funds

Posted on: March 19, 2017

Inspired by her sick mother, an adorable 9-year-old girl in the Netherlands started to fundraise for OMF. Together with her classmates in Room 5A at the Rainbow School, this Team OMF hero raised over $130. That wasn’t good enough for her so she created a new movement called “kiss ME goodbye.” #kissMEgoodbye is a social…

A Sister’s Love Leads to Action

Posted on: February 17, 2017

Artist and creative designer Kristine Claghorn shared her passion for OMF with the world this Valentine’s Day. She collaborated with Agapantha Jewelry and created a beautiful desert moon ring, inspired by her paintings, with the proceeds benefiting OMF. Kristine’s brother Matt has been a patient for over ten years. We are grateful to Team OMF…