Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

Open Medicine Foundation has a CrowdChange page that is just waiting you to tell your personal story and setup your own fundraising. These days, people are raising money doing everything from growing mustaches to shaving their heads to writing poetry! So get creative and do something you think might resonate with your friends, family, and social network. Make it meaningful, and have fun with it.

CrowdChange fundraising pages are easy to set up and a fun way to share a cause you’re passionate about (especially Open Medicine Foundation). You can easily send a link to your OMF CrowdChange page via email, Facebook, or Twitter and ask for donations.

All donations will go directly to OMF. CrowdChange has generously donated the use of their platform to OMF to support our research and they do not charge OMF any administrative fees. Your supporters will automatically receive an email receipt acknowledging their gift is 100% tax-deductible from OMF.

Step 1: Create Your Personal Page

Go to OMF’s CrowdChange page. It is very important to make sure you create your page under this umbrella so it shows up at the bottom of our page as one of our fundraisers.


Step 2: Set Up Your Account

To create your own celebration or Team OMF account you need to first create an account with CrowdChange. Click the LOGIN on the far right of your screen. A box will pop-up prompting you to set up your own account. Be certain to save your login information so that you can access your account whenever you need to.


Step 3: Start a Fundraiser

On OMF’s CrowdChange page, click on the blue button on the upper right titled START A FUNDRAISER.


Step 4: Provide Your Event Details

At this point, you will create your fundraiser. You must create a name for your fundraiser, identify if it is in honor of someone or for a Team OMF event, set your fundraising $ goal, and explain the who/what/where/when and why of your fundraiser. Remember, people give to people. So make your page personal.

Don’t worry, you can always add things and make changes to it later. This is the biggest task. So when you complete this step, you’ll be almost done.

This page will give you the opportunity to upload a photo. It’s not required, but we definitely recommend it as a way to personalize your message, tribute or event and to help people identify your fundraiser from all the others. Make it a picture of yourself, the person you’re honoring, the two of you together, something fun about the event you are planning or even an inspirational quote you love.  The photo really helps to personalize your fundraising effort.


Step 5: Create Your Fundraiser

To save your page, click the blue CREATE FUNDRAISER button.


Once your page is created, you can always go back to edit details or add information.

Step 6: Event Logistics

If you identified that your fundraising page is in support of a Team OMF fundraising event (this option will only appear if you clicked YES for Is this an event), you will then be prompted to continue. Click the CONTINUE button.


You will then be asked to fill in the specific event information: Date, Time, and Address are required. You can also select if you want your guests to receive a ticket from CrowdChange with their confirmation email. Remember to again click the blue CREATE FUNDRAISER button.


Step 7: Spread the Word

You are ready to promote your event. Send out an email blast to everyone you can and invite them to participate, attend, donate, and get involved. Be certain to include the link to your personal page. Copy the url and insert it as a hyperlink in your email messages. Share your event on your Facebook and Twitter profiles directly from your event using the Facebook and Twitter buttons on your event. Everything you do helps to support OMF’s research program.


Step 8: Editing Your Event

To EDIT your event details, log in and click the black EDIT button. Then feel free to make all of your changes.


Remember to SAVE CHANGES to any editing you do on your event page.


Step 9: You are Done!

When you are done, your event for Open Medicine Foundation will be listed on the OMF CrowdChange page.


Important note: Open Medicine Foundation has the right to review and accept or deny events/fundraising campaigns. If there is any questionable materials posted, they will be removed from the site.

If you need help or have any questions, please contact us by email.

We encourage you to share your event on your Facebook and Twitter profiles.

Good Luck and have FUN!


Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

What are the advantages of giving from your Donor Advised Fund (DAF)?

  • Your gifts to your donor advised fund entitle you to an immediate income tax deduction at the time of contribution.
  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
  • Your fund’s investment gains accumulate tax free.
  • Funds are distributed to Open Medicine Foundation in your name and immediately put to use to support our worldwide research efforts.

How do I make a donation through my DAF?

Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

Still can’t find your fund? 

  • Request a grant distribution through your Donor Advised Fund sponsor
  • Be sure to use OMF’s EIN #26-4712664
  • You can also designate OMF as a beneficiary for your Donor Advised Fund
  • Questions? Give us a call at 650-242-8669 

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.


In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.


The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.


About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of six prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.


Heather Ah San

Development and Communications Manager