Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

Newsletter March 2021

OMF joins the Long COVID Alliance to accelerate research for post-infectious illness Open Medicine Foundation (OMF) is pleased to announce that we have joined 49 new partners in the fight to return millions of Americans to health. The Long COVID Alliance is a network of patient advocates, scientists, disease and

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Newsletter February 2021

An Update from Chris Armstrong, Director, Melbourne ME/CFS Collaboration The Melbourne ME/CFS Collaboration is the fifth and newest OMF funded collaborative research center. After making the journey to Australia to set up the Collaborative Research Center (CRC), Director Chris Armstrong began the groundbreaking study that he hopes will improve the

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Newsletter October 2020

Join our Mission to End ME/CFS: Your Digital Fundraising Toolkit is Here! Passionate about our mission to end ME/CFS? Join us in our fight to fast-track critical research into Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) by starting your own digital fundraiser! Open Medicine Foundation (OMF) is excited to

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Newsletter – August 2020

OMF’s ME / CFS and COVID-19 Research Project Brought into National Focus Open Medicine Foundations’ ME / CFS and COVID-19 research project was brought into national focus at a recent, federally-sponsored meeting of the first-ever virtual Interagency ME / CFS Working Group Meeting. This first meeting of the new Working Group focused on ME / CFS and those

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You Inspire Us!

Riding to Raise Awareness: A Sister’s Fight to End ME / CFS Biking from coast to coast of any country is a significant journey. Although the stunning backdrop of Sweden’s coastline may be enough to inspire the ride, the motive for Swedish OMF supporter Olivia goes much deeper; Olivia’s sister Clara has

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March 2020 Newsletter

OMF 2019 YEAR IN REVIEW We realize that you take your philanthropy seriously, and we are honored by your belief in our mission and our efforts to end Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS). The accomplishments contained in the following, OMF 2019 Year in Review, are only possible because of you;

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November Newsletter

HARVARD-AFFILIATED HOSPITALS EXAMINE ME / CFS PATIENT CARE Ronald G. Tompkins, MD, ScD, co-director of the OMF-funded Harvard ME / CFS Collaboration, and collaborative team member, Amel Karaa, MD, are diving into the current state of care for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) patients. Tompkins and Karaa, together with OMF CEO/President Linda Tannenbaum, are

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October Newsletter

Ron Tompkins and Jonas Bergquist Attend RME Sweden Conferences OMF Scientific Advisory Board members Ronald G. Tompkins, MD, ScD, and Jonas Bergquist, MD, PhD, are participating at the annual RME sponsored Roundtable meetings at the Lejondal Castle outside Stockholm on October 15-16. These meetings bring together leading researchers and clinicians

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August Newsletter

3rd Annual Community Symposium Registration Open Registration is open for the 3rd Annual Community Symposium on the Molecular Basis of ME / CFS at Stanford University, sponsored by OMF, on Saturday, September 7, 2019. To attend the event in person at Stanford University, click here to register. To watch the event via Livestream from anywhere

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More Exciting Happenings During May Momentum

  The Second Annual May Momentum continues with tremendous energy and enthusiasm. In the first half of this month, we have celebrated and stood together to raise awareness and critical donations for research. Thank you to everyone who has already taken part in the May Momentum actions. We still have

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Meet OMF’s New Scientific Advisory Board Members

Jennifer Frankovich, MD, Daniel Peterson, MD, & Michael Snyder, PhD, Join OMF’s Scientific Advisory Board We are delighted to announce the addition of three leading researchers to OMF’s Scientific Advisory Board. Jennifer Frankovich, MD, has experience in autoimmunity and post-infectious inflammatory diseases. Daniel Peterson, MD, is a recognized medical expert

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Spring 2019 Newsletter

Follow ME / CFS Researchers Gathering Around the World Dear Friends, We are in a very busy and exciting time. OMF-funded scientists are meeting around the globe with other experts to advance research. We were thrilled to have such a strong presence at the Emerge Australia conference. As reports, recordings and information is available,

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

 

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo