Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

Meet OMF’s New Scientific Advisory Board Members

Jennifer Frankovich, MD, Daniel Peterson, MD, & Michael Snyder, PhD, Join OMF’s Scientific Advisory Board We are delighted to announce the addition of three leading researchers to OMF’s Scientific Advisory Board. Jennifer Frankovich, MD, has experience in autoimmunity and post-infectious inflammatory diseases. Daniel Peterson, MD, is a recognized medical expert

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Spring 2019 Newsletter

Follow ME / CFS Researchers Gathering Around the World Dear Friends, We are in a very busy and exciting time. OMF-funded scientists are meeting around the globe with other experts to advance research. We were thrilled to have such a strong presence at the Emerge Australia conference. As reports, recordings and information is available,

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Winter 2019 Newsletter

Join Us to Welcome Chris Armstrong & More Thank you to the many people around the world who submitted heartfelt poems and art pieces for our first Hope and Heart Unite for ME / CFS Poetry and Art Slam. Please take a few minutes over the next few weeks to read and

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Triple Tuesday Research Update

A Message from Ron Davis I’m excited to announce that we have added two eminent Stanford engineering researchers to expand our red blood cell deformability project. Eric Shaqfeh, PhD, is famous for his computational modeling of microfluidic flow. His past work has been modeling air flow over aircraft wings to

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OMF-Funded Research Overview 2018

OMF-Funded Research 2018 I am proud to share with you the new and expanding research projects that we are funding this year. As we have recently shared, research is quickly expanding. We look forward to continuing to share updates with you about our exciting Collaborative Research Centers at Stanford and

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OMF Newsletter – March 2018

Linda Tannenbaum Named 2017 Advocate of the Year There’s an Angel Among Us – Linda Tannenbaum Is Offering Genuine Hope to ME / CFS Patients (Shared from ProHealth) ProHealth is proud to name Linda Tannenbaum, founder of Open Medicine Foundation, as ProHealth’s 2017 ME / CFS Advocate of the Year. ProHealth founder, Rich Carson said, “Linda is a

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OMF Newsletter – Winter 2018

2018 Begins with a Special $5 Million Gift from the Pineapple Fund Early in January, we were joyfully surprised by a generous $1 million gift from the Pineapple Fund, an anonymous bitcoin investor whose website states “because once you have enough money, money doesn’t matter.” “Pine” said that he/she is

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OMF Newsletter – December 2017

ME / CFS Collaborative Research Center Update from Ron Davis, PhD [fvplayer src=”https://www.youtube.com/watch?v=ABeGOaHx8wg” width=”400″ height=”231″] We are happy to share a video research update from Dr. Ron Davis about the ME / CFS Collaborative Research Center at Stanford funded by OMF! This is the first of a 3-part series; the next two will feature Drs. Mike Snyder and Mark Davis of

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OMF Newsletter – November 2017

OMF Welcomes Jonas Bergquist, MD, PhD to our Scientific Advisory Board OMF enthusiastically welcomes Dr. Jonas Bergquist to our Scientific Advisory Board. Dr. Bergquist is a Full Chair Professor in Analytical Chemistry and Neurochemistry in the Department of Chemistry at Uppsala University, Sweden, Adjunct Professor in Pathology at the University

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OMF Newsletter – October 2017

Triple Giving Tuesday is Coming Soon We are thrilled to announce we will once again celebrate #GivingTuesday as Triple Giving Tuesday. Jack and Dilla Cosgrove and Family have generously pledged up to $100,000 to triple your support for research. If you give $250, the Cosgrove family will match $750 and your

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OMF Newsletter – August 2017

August 2017 DONATE TO OMF Community Symposium Summaries Now Published As you have probably heard by now, our recent Community Symposium on the Molecular Basis of ME / CFS at Stanford University was a huge hit! You can now read about the details in two pieces published by Raeka Aiyar, who emceed

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OMF Newsletter – July 2017

July 2017 DONATE TO OMF Community Symposium on the Molecular Basis of ME / CFS Sponsored by OMF Saturday, August 12, 2017 at Stanford University Join us to meet this outstanding team of researchers in person. Event Speakers: Ronald W. Davis, Stanford University Bob Naviaux, University of California, San Diego Chris Armstrong,

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of six prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo