Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

Meet OMF’s New Scientific Advisory Board Members

Jennifer Frankovich, MD, Daniel Peterson, MD, & Michael Snyder, PhD, Join OMF’s Scientific Advisory Board

We are delighted to announce the addition of three leading researchers to OMF’s Scientific Advisory Board. Jennifer Frankovich, MD, has experience in autoimmunity and post-infectious inflammatory diseases. Daniel Peterson, MD, is a recognized medical expert in ME / CFS. Michael Snyder, PhD, a leader in the field of functional genomics and proteomics.

Our research team is working collaboratively and openly to find answers. Please join us in welcoming the newest members of our team.

Jennifer Frankovich, MD

Jennifer Frankovich, MD, is a pediatric rheumatologist in California and is an expert in systemic autoimmune and post-infectious inflammatory diseases that affect the brain and specializes in Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS)/ Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS). Dr. Frankovich is the PANS Program Director at Stanford Children’s Hospital and an Associate Professor in Pediatrics and Pediatric Rheumatology at Stanford School of Medicine. Dr. Frankovich’s clinical experience in autoimmunity and post-infectious inflammatory diseases are highly relevant as ME / CFS is thought to have an autoimmune component that might manifest after symptoms of an infection.

Dr. Frankovich received her MD from the University of Nevada School of Medicine and completed her residency and fellowship at Stanford University.

Daniel L. Peterson, MD

Daniel L. Peterson, MD, is an internist in Incline Village, Nevada and recognized medical expert on ME / CFS. Dr. Peterson has devoted more than 25 years of his clinical career to diagnosing and caring for patients with ME / CFS and related neuroimmune disorders, as well as collaborating with researchers to better understand the illness. Dr. Peterson’s experience as both a clinician and a research collaborator provide a unique perspective on ME / CFS for developing translational science.

Dr. Peterson’s interest in ME / CFS began in 1984 when Incline Village became the site of an unusual cluster of individuals presenting with unexplained flu-like symptoms that would not go away. Many of those individuals remained bedridden for extended periods of time. Dr. Peterson was perhaps the first to recognize these symptoms as something deserving of more attention.

Dr. Peterson received his MD from the University of Rochester School of Medicine, Rochester, NY, and completed his internship and residency at the University of Utah Medical Center.

Michael Snyder, PhD

Michael Snyder, PhD, is a leader in the field of functional genomics and proteomics, and one of the major participants of the ENCODE project. Seminal findings from the Snyder laboratory include the discovery that much more of the human genome is transcribed and contains regulatory information than was previously appreciated, and a high diversity of transcription factor binding occurs both between and within species. He has also pioneered the use of different state-of-the-art “omics” technologies as well as wearable devices (smart watches and continuous glucose monitoring) for managing human health. Dr. Synder’s expertise in “omic” and wearable technologies will be invaluable in both current and future ME / CFS research efforts.

Dr. Snyder is the Stanford W. Ascherman Professor and Chair, Department of Genetics and Director, Center for Genomics and Personalized Medicine at Stanford University. Dr. Snyder received his PhD at the California Institute of Technology and carried out his postdoctoral training at Stanford University.

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

 

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo