Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS), Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid
The Ronald G. Tompkins Harvard ME/CFS Collaboration
at the Harvard Affiliated Hospitals
Clinical and scientific studies to understand and discover new treatments for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), Long COVID, and related Multisystem, Chronic Complex Diseases (msCCD).
Established in 2018, this research initiative is based at Harvard affiliated hospitals, including Massachusetts General Hospital (MGH), Brigham and Women’s Hospital (BWH), and Beth Israel Deaconess Medical Center (BIDMC).
Including the faculty of the Harvard affiliated hospitals, critical collaborations are represented from Stanford University, Cornell University, University of Birmingham, University of Nottingham, Uppsala University and Pacific Northwest National Laboratory.
In early 2022, David Systrom, MD joined Wenzhong Xiao as a Co-Director after Ronald G. Tompkins’ sudden passing.
This research collaboration seeks to understand and discover new treatments for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), Long COVID, and related Multisystem, Chronic Complex Diseases (msCCD).
Core Aims
Understand
the underlying basis of post-exertional malaise and/or post-muscular stress
Determine
the role of neuroinflammation in ME/CFS
Diagnose
possible pathologies associated with ME/CFS patients
Ascertain
the role of circulation and autonomic issues in ME/CFS
Increase
efficiency of clinical visits for ME/CFS patients to significantly reduce wait times
Develop
the infrastructure to begin treatment trials and form a center of excellence for ME/CFS
Fundamental Philosophy
Work collaboratively with other groups
Use the most advanced technology available to perform the research
Explore the research community to find experts in the areas to study
Take direct measures from ME/CFS patients to avoid artificial observations
Research multiple tissues of the body and consider stark differences of different cell types
From the desk of Ronald Tompkins, MD, ScD Chief Medical Officer, Open Medicine Foundation #TripleGivingTuesday Research News Transforming the Diagnosis and Treatment of ME/CFS, Post-Treatment
From the desk of Ronald G. Tompkins, MD, ScD Co-Director, The Harvard ME / CFS Collaboration Mestinon Trial Update In May, 2020, Open Medicine Foundation (OMF) announced
Researchers are developing a tool to help clinicians more efficiently define the character and priorities of a patient’s current symptoms of ME/CFS, Post-Treatment Lyme Disease, or Fibromyalgia.
Please help us expand our research efforts across the globe. Every donation brings us closer to a fully-funded research effort and the answers we all seek.
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