News Blog
Our own ME/CFS Scientific Advisory Board director, Ron Davis, PhD, and his family, struggle with severe ME/CFS. Whitney, Dr. Davis’ son, has it. This has become widely known in the ME/CFS community. Now many in the public know it through the excellent coverage from news media coverage in Palo Alto, Cal. Davis, an esteemed geneticist,…
As word is spreading about the ME/CFS Severely Ill-Big Data Study, the first study of the End ME/CFS Project, organizations and bloggers are revealing more details of how this study is different and why it will likely to lead to game-changer discoveries. In May, Michal Hajcik, with #ME Action, did a Q&A with us about…
The NIH released its P2P (Pathways to Prevention) report with suggestions on what types of ME/CFS studies should be conducted. As most expected, the panel called for a singular and better diagnostic criteria to be used in research, or at least for more details of cohorts to be given so comparisons between studies can easily…
Linda Tannenbaum, our organization director, explains our new study: the ME/CFS Severely Ill, Big Data Study. Geoff Langhorn hosted her in May, 2015, on his “Inside Job” radio show that airs on CFMU in Canada. We invite you to hear why this study is so different and what motivated her to get involved in ME/CFS research….
After a careful review of what is needed to “End ME/CFS,” our ME/CFS Scientific Advisory Board determined the first step is to look for answers in an often overlooked population in ME/CFS research: the severely ill. While the board director, Ronald W. Davis, PhD, has a son with a severe case of the disease, it…
By Linda Tannenbaum A February Institute of Medicine report said up to 91 percent of people with chronic fatigue syndrome have not been diagnosed. These people are not receiving appropriate treatments or healthcare advice. If you feel tired often, how would you know if you have this disease? ME/CFS, myalgic encephalomyelitis, also known as “chronic fatigue syndrome”…
Andreas Kogelnik, MD, PhD, President and Founder of the Open Medicine Institute (OMI) and a member of the OMF ME/CFS Scientific Advisory Board, comments on a busy and progressive year of research funded by OMF-Open Medicine Foundation. “It has been a busy and progress-filled year at OMI and OMF. With the very generous support…
$227,000 Sunshine Project Grant for Gene Expression and Cell Separation Equipment. Affymetrix System Humans have tens of thousands of genes, and Microarrays Chip with 70,000+ genes will make it possible to examine the expression of these genes at once taking a small volume of blood or tissue from patients. Microarrays are one of the key tools in…
Successful Crowdfund goal of $150,000 was reached for a multi-site study to test the benefits of Methyl B12 and Methyl Folate supplementation in Chronic Fatigue Syndrome (ME/CFS) patients with and/or without a MTHFR gene mutation. This study will test the benefits of this treatment for ME/CFS patients and if the gene mutation makes a difference…
Open Medicine Foundation & Institute are thrilled to announce receipt of $612,000 toward a series of investigative research projects that will take us one step further in our quest to find a cure for neuro-immune illnesses. Compelling areas include an in-depth study of 20 ME/CFS patients: Whole genome sequencing A virome survey of oral viral flora Two…
