Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

Finding answers isn’t just urgent — it’s long overdue

When Linda Tannenbaum’s 16-year-old daughter came down with sudden onset ME/CFS in 2006, she was shocked to discover that there were no diagnostic tests or treatments for the devastating disease — one that prevented her daughter from leaving her bed and living her full life. 

After researching options, Linda realized that open, collaborative research into the disease was terribly lacking, as was research funding. So in 2012, she established Open Medicine Foundation to fundraise for and facilitate large-scale research of ME/CFS and related chronic complex diseases to find diagnostic tools, treatments, and, ultimately, a cure. 

Nine years later, we’re so proud of the progress that’s been made: We have funded over 20groundbreaking studies

through the OMF ME/CFS Research Collaborative, a global network of five prestigious academic research institutions led by some of the world’s foremost researchers. The projects and trials continue to make great strides towards finding answers for millions suffering from ME/CFS, Post-treatment Lyme Disease, and Fibromyalgia — and now potentially millions more with Long COVID. 

Unfortunately, research into chronic complex diseases continues to be woefully underfunded by public institutions. OMF was established to help fill that void, urgently raising money and awareness to provide a better way to diagnose and effectively treat so many who have been left behind. As Jacqueline Ko, an OMF Ambassador living with ME/CFS, powerfully states:

“I don’t even remember what it’s like to be healthy — many of us have been living in lockdown for decades. For the ME/CFS community, finding answers isn’t just urgent, it’s long overdue.”

This is what motivates our momentum. But we can only keep this critical research going with your support. 

Please consider becoming a sustaining monthly donor today and help us find answers to return millions to health!

A great research strategy is not enough. To succeed, we need funding to accelerate this research. With optimism and perseverance, we are determined to reach our aggressive funding goals to continue driving research, so we can bring the millions suffering back to good health.

We need your help to keep the momentum going!

Join us in our mission to find the answers, and change the course of history.
Become a sustaining donor today!

Stay Informed

Be the first to hear our research news.

Subscribe Now.

No thanks

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

 

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

###

About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo