Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

A New $1,000,000 ME/CFS Research Grant!

#MayMomentum 2021 campaign kick-off

A new $1,000,000 ME/CFS research grant!

Today Open Medicine Foundation launches its fourth annual #MayMomentum campaign to commemorate ME/CFS International Awareness Day on May 12, and honor the millions of lives disrupted by chronic complex diseases.

May Momentum is an extraordinary effort by OMF to increase awareness and raise funds to energize nearly 20 OMF-funded research projects conducted by the OMF Research Collaborative.  Our studies strive to find answers, treatments, and a cure for ME/CFS  and related chronic complex illnesses, including Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID Syndrome (also known as Long COVID).

On this first day, we are thrilled to announce that OMF has received an incredibly  generous grant from the Khosla Family Foundation of $1,000,000 to advance this critically needed research! The grant will fund groundbreaking research projects being conducted at the OMF funded ME/CFS Collaboration at Uppsala University, directed  by Dr. Jonas Bergquist, and Melbourne ME/CFS Collaboration, led by Dr. Christopher Armstrong.

We are passionate about winning this fight! OMF works every day to push research forward, seek new collaborative opportunities, and attract the resources necessary to win the fight against ME/CFS and related diseases, returning millions to the healthy lives they deserve.

We sincerely hope you will join our worldwide community and support OMF during this year’s #MayMomentum campaign. Together, we can amplify our mission to end the suffering endured by millions worldwide.

The Research

“Identifying disease development pathways and exacerbating factors” 

This study, conducted by the Melbourne Collaboration, will investigate the hypothesis that ME/CFS has a central energy metabolism issue underlying its common symptoms. This study will use grant funds to analyze and compare data from the UK Biobank with datasets Melbourne obtained from three other research entities.

“Identifying objective behavioral markers of deficit in patients with ME/CFS”

Also led by the Melbourne Collaboration, the objective of this study is to identify ocular motor (eye control) measures in the brain unique to people with ME/CFS. This project will be done in collaboration with Monash University.

“Analyzing cerebrospinal fluid and plasma samples through proteomics and metabolomics”

Led by the Uppsala ME/CFS Collaboration, researchers will collect additional samples of cerebrospinal fluid and plasma from ME/CFS participants and analyze them through proteomics (the large-scale study of proteins) and metabolomics (analysis of the metabolism) to further researchers’ understanding of the underlying causes of the disease through current research at Uppsala.

Also led by the Melbourne Collaboration, the objective of this study is to identify ocular motor (eye control) measures in the brain unique to people with ME/CFS. This project will be done in collaboration with Monash University.

OMF extends our sincere gratitude to the Khosla Family Foundation for their generosity and investment in the OMF Collaborative for ME/CFS research. We also would like to thank Dr. Bergquist and Dr. Armstrong for their commitment to finding treatments and a cure for millions suffering from chronic complex diseases.

It’s only through the power of community that we will find answers. This #MayMomentum we invite you to help accelerate research into these life-altering diseases — here’s just a few ways you can get involved:

When you support OMF, this critical research gains momentum — and with you on our team, we remain hopeful answers will be found. Thank you for your support!

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

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  • Questions? Give us a call at 650-242-8669 
 

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of six prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo