Open Medicine Foundation®
Leading research. Delivering hope.
ME/CFS and related chronic complex diseases

Worldwide Tour Blog

omf-newsletter-2017-06-3-1920x600

Dream. Believe. Do It . . . Join Team OMF in Hope

The Strength of Support Groups – Reflections from the Tour

On my travels through Europe I am reminded of the incredible work done by national organizations and local support groups on so many levels, and how important these groups are for patients and parents in those countries. Most European countries have one or several big and smaller support groups, with members ranging from a few…

Read More

Visiting Norway, Home to Two of Our Newest Scientific Advisory Board Members (June 12)

I am in my fourth week of OMF’s European Tour of Hope and had the joy today of being able to meet with our Norwegian ME/CFS friends again. They welcomed me warmly in beautiful Oslo, a city surrounded by the most spectacular scenery, including fjords, lakes, mountains and forests. The Norwegian ME Association organized a…

Read More

Day 14: Antwerp – Belgium (June 7)

Nederlands Today, for the first time, I visited Belgium. What a beautiful country with wonderful medieval towns. My husband Don accompanied me to a conference hosted by Wake Up Call Beweging. 55 people, mostly patients and parents, attended the event. Some of these parents have very young children. Their personal stories touch me deeply, and…

Read More

IiME Conference: Patient Day (June 2)

I have been attending the IiME Conference for four years. Each year, one of the highlights of the conference is the Patient Day. This is the day when new and old friends come together and feel the support and strength of our community. Each year I am inspired by the commitment and resolve of the…

Read More

Inspiring visit from Linda Tannenbaum, from OMF in California, 24 – 26 May

Information provided by Celia Marshall, ME Support, Isle of Man We gave Linda a jammed packed programme of meetings with various people including the Minister Kate Beecroft (photo), presentations to Members of Tynwald (Isle of Man Parliament) a public meeting, informal meetings with members, and Manx Radio, all to raise awareness and move forward government plans to set…

Read More

Tour Impressions: “My heroes are not footballers or movie stars, but people like you and Ron”

It has been so heartwarming that everywhere I visit in Europe, people are so happy and appreciative to hear first-hand research updates. They are feeling a sense of real hope for a better future. One of the Isle of Man organizers contacted OMF saying, “My heroes are not footballers or movie stars but people like…

Read More

Major announcement from Northern Ireland following OMF visit

Dear Friends, I have a very exciting breakthrough to share with you as a result of our tour of hope and visit to Northern Ireland Dr. Ian Clements, Chairperson of the Health and Social Care Board has confirmed that ALL 365 General Practitioner (GP) practices in Northern Ireland will receive new updated information on ME/CFS…

Read More

Linda’s Impressions: “My heroes are the fighting patients and parents I have met so far”

I am one week into my European tour of Hope. I have been to the Isle of Man, Ireland and Northern Ireland. This truly has been a fantastic experience meeting passionate advocates, caring people, desperate parents, and wonderful, determined patients. With so many people showing up to the talks in these countries, I can’t possibly…

Read More

June 1: Meeting Friends and Collaborators at IiME in London (Day 9)

Good Morning Dear European ME/CFS Friends and Supporters, As I prepare for the Patient Day at the Invest in ME International Conference in London, I quickly wanted to update you on yesterday’s events. OMF again had a very exciting day at the Research Colloquium for scientists. We started off early with a productive breakfast meeting…

Read More

Arrived in London at BRMEC! May 31

I’ve arrived in London at the 12th annual Invest in ME conference (BRMEC7) late Tuesday night. On Wednesday morning we started off the day at breakfast with Drs. Jonas Blomberg and Jonas Bergquist of Uppsala University in Sweden. They updated us on their research funded by OMF. I am here with Dr. Ron Davis who…

Read More