Worldwide Tour Blog

omf-newsletter-2017-06-3

Inspiring visit from Linda Tannenbaum, from OMF in California, 24 – 26 May

Information provided by Celia Marshall, ME Support, Isle of Man We gave Linda a jammed packed programme of meetings with various people including the Minister Kate Beecroft (photo), presentations to Members of Tynwald (Isle of Man Parliament) a public meeting, informal meetings with members, and Manx Radio, all to raise awareness and move forward government plans to set…

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Tour Impressions: “My heroes are not footballers or movie stars, but people like you and Ron”

It has been so heartwarming that everywhere I visit in Europe, people are so happy and appreciative to hear first-hand research updates. They are feeling a sense of real hope for a better future. One of the Isle of Man organizers contacted OMF saying, “My heroes are not footballers or movie stars but people like…

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Major announcement from Northern Ireland following OMF visit

Dear Friends, I have a very exciting breakthrough to share with you as a result of our tour of hope and visit to Northern Ireland Dr. Ian Clements, Chairperson of the Health and Social Care Board has confirmed that ALL 365 General Practitioner (GP) practices in Northern Ireland will receive new updated information on ME/CFS…

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Linda’s Impressions: “My heroes are the fighting patients and parents I have met so far”

I am one week into my European tour of Hope. I have been to the Isle of Man, Ireland and Northern Ireland. This truly has been a fantastic experience meeting passionate advocates, caring people, desperate parents, and wonderful, determined patients. With so many people showing up to the talks in these countries, I can’t possibly…

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June 1: Meeting Friends and Collaborators at IiME in London (Day 9)

Good Morning Dear European ME/CFS Friends and Supporters, As I prepare for the Patient Day at the Invest in ME International Conference in London, I quickly wanted to update you on yesterday’s events. OMF again had a very exciting day at the Research Colloquium for scientists. We started off early with a productive breakfast meeting…

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Arrived in London at BRMEC! May 31

I’ve arrived in London at the 12th annual Invest in ME conference (BRMEC7) late Tuesday night. On Wednesday morning we started off the day at breakfast with Drs. Jonas Blomberg and Jonas Bergquist of Uppsala University in Sweden. They updated us on their research funded by OMF. I am here with Dr. Ron Davis who…

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May 29: Newry – Northern Ireland (May 29)

After a very exciting weekend in the Republic of Ireland, I was invited to the other part of the Island, Northern Ireland, which is part of the United Kingdom, by “Hope 4 ME & Fibro”. Thomas McParland was kind enough to come to Dublin to pick me up and drive me to Newry, the first…

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Isle of Man: Improved ME/CFS Care On The Horizon After Linda’s Visit!

Update provided by Isle of Man ME Support Group. On Monday, Celia Marshall Chair of the Isle of Man ME Support Group, said on Manx Radio that improved care for ME/CFS patients could soon be on the horizon. She says talks are on-going with the Department of Health and Social Care about what services could…

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May 30: Belfast – Northern Ireland (Day 7)

On Tuesday May 30th, my 7th day into the European Tour of Hope, I visited Belfast in Northern Ireland. Andy Hugh made it very easy for me and took me by the hand every step of the way from Newry to Belfast. Thank you Andy for taking care of me in such a warm way…

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May 28: Dublin, Republic of Ireland (Day 5)

On Sunday, May 28th Linda gave an inspiring presentation at a public meeting in Dublin at an airport hotel. The meeting was set up by Tom and Vera Kindlon of the Irish ME/CFS Association. Over 80 people attended: half of them were patients, and the other half were parents and caregivers. Linda had the honor…

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