Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

New tool to educate your community about chronic disease!

Introducing OMF’s Social Shareables Web Portal!

New tool to help educate your personal communities

As part of #TripleGivingTuesday, we are pleased to announce that we have developed a new tool to help you educate your personal communities about ME/CFS and related multisystem chronic, complex diseases (msCCD).

Use our new Social Shareables page to download educational graphics about ME/CFS, Fibromyalgia, Long COVID, and Chronic Lyme Disease and share them on social media. The steps are easy: click on each image to download and post directly to Instagram, Twitter, and/or Facebook!

You can also follow OMF on our social media channels and share or retweet our informational content! (@OpenMedF on Twitter and Instagram.) We hope you find this to be a valuable resource in helping the greater community understand ME/CFS and related multisystem chronic, complex diseases. Don’t forget to tag us (type ‘@OpenmedF’), in your social shareables post so we can help you to get the word out! 

Want to connect with others within the chronic disease community? Try using these hashtags on your posts:

#SpoonieSupport #PwME #MillionsMissing #EndMECFS #SpoonieCommunity #Butyoudontlooksick #Chronicillness 

Announcing OMF's Featured Triple Giving Tuesday Artist!

Last month, we asked our community of people affected by multisystem chronic, complex diseases to submit their art for a chance to become OMF’s Featured Triple Giving Tuesday artist. 

We received so many amazing submissions — we are truly blown away by the creativity and talent of the community! We are excited to announce that our selected winner is Lee Stocker!

Lee explains, “I have suffered from moderate/severe ME/CFS for most of my adult life (I am now 48 years old). I enjoy painting mostly seascapes. I miss being able to travel to the sea, so I paint it instead. I suppose it’s a form of therapy. ME/CFS generally stops me physically going anywhere but my imagination takes me there when I paint. 

I mostly paint in soft pastels and watercolor, as they are generally “fast mediums.” This means I can produce a piece of artwork (when not brain fogged) before the post exertion malaise (PEM) kicks in.”

Congratulations, Lee! We hope people with chronic diseases worldwide can resonate and take comfort in the beautiful sea landscapes.  OMF also sends our heartfelt gratitude to all those who submitted their work! 

There’s no better time to support OMF’s critical mission than
Triple Giving Tuesday!

All donations received by OMF any day of the week will be TRIPLED until November 30, 2021. That means your gift of $10 = $30, and so on! Don’t miss out on this opportunity to triple your impact on research into related chronic, complex diseases.

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

What are the advantages of giving from your Donor Advised Fund (DAF)?

  • Your gifts to your donor advised fund entitle you to an immediate income tax deduction at the time of contribution.
  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
  • Your fund’s investment gains accumulate tax free.
  • Funds are distributed to Open Medicine Foundation in your name and immediately put to use to support our worldwide research efforts.

How do I make a donation through my DAF?

Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

Still can’t find your fund? 

  • Request a grant distribution through your Donor Advised Fund sponsor
  • Be sure to use OMF’s EIN #26-4712664
  • You can also designate OMF as a beneficiary for your Donor Advised Fund
  • Questions? Give us a call at 650-242-8669 
 

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of six prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo