Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

Severely Ill ME / CFS and Family’s Struggle Featured in a Mini-Documentary

Our own ME / CFS Scientific Advisory Board director, Ron Davis, PhD, and his family, struggle with severe ME / CFS. Whitney, Dr. Davis’ son, has it. This has become widely known in the ME / CFS community. Now many in the public know it through the excellent coverage from news media coverage in Palo Alto, Cal.

Davis, an esteemed geneticist, is not immune from the affects of this disease. It can strike anyone, at any time.

We invite you to view this riveting and revealing video (right) that gives insight into the daily realty of Ron Davis, his wife Janet Dafoe and their two children, Ashley and, of course, Whitney. What’s it like to live with severe ME / CFS as a patient or caregiver? How does this impact the whole family?

Two other patients and Dr. Andy Kogelnik, who also sits on our ME / CFS Scientific Advisory Board, are interviewed as part of this piece filling in details from a medical doctor’s perspective and patients with varying degrees of severity.

This is why our foundation is raising funds to conduct the ME / CFS Severely Ill-Big Data Study. Please consider donating to help us discover biomarkers that may lead to effective treatments.

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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