Open Medicine Foundation®
Leading research. Delivering hope.
ME/CFS and related chronic complex diseases

News Blog

Fox News Picks up on Davis / Dafoe / OMF Research Story

As is often the case, big news starts in the print news media and is then picked up by broadcasting news. Citing stories in The Atlantic and Washington Post, Fox News did a short online text piece highlighting our ME/CFS Scientific Advisory Board director, Ronald W. Davis, PhD, and the struggles of his son, Whitney…

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New Video Succinctly Reveals More about OMF and the End ME/CFS Project

Want others to know why you support our foundation and the research we’re doing, especially the End ME/CFS Project? We have created this 3.5-minute video that gets the point across succinctly. Some added graphics help to visually emphasize the expertise of our ME/CFS Scientific Advisory Board and the unique advantage we have to produce results…

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National Magazine Exposes ‘Tragedy’ of ME/CFS

People impacted by ME/CFS are always glad to see the news media give accurate attention to the disease and the struggle for appropriate federal research funding. Rarely does a national media company do an in-depth report. But this month, The Atlantic magazine did just that in an article titled “The Tragic Neglect of Chronic Fatigue Syndrome.” You…

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Washington Post Article Focuses on Davis and OMF Research

Our ME/CFS Scientific Advisory Board director’s scientific accomplishments and personal story is attracting national news media attention. The Washington Post is the latest to publish a story exposing the irony that an innovate geneticist is dealing with a scientific mystery in his own house. Whitney Dafoe, Davis’s son, suffers from a severe form of ME/CFS,…

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Positive Reviews Make OMF a Top-Rated Charity

Great Nonprofits, an information resource about nonprofit charities, has included our organization as one of the 2015 Top-Rated Charities, thanks in large part to the many positive reviews from donors, patients, and more. This honor reflects our hard work and dedication to transparency and keeping our mission, Ending ME/CFS with research, our priority every day. We…

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Movie Released is Opportunity for Fundraising and Awareness

Sixteen months of traveling, filming, raising money and editing – creating a movie is not a small feat. But “Forgotten Plague” is finished and ready to be shown. Through the distribution company Tugg, the producers are inviting patients to get involved through major showings at movie theaters or in small venues, such as at churches….

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Phase I of the End ME/CFS Project Is Funded

We are thrilled to announce we recently received $350K from a generous anonymous donor for the ME/CFS Severely Ill-BIG DATA Study. This is added to the $500K anonymous donation and other tremendous support we have received from generous one-time donations, recurring donations, crowdfunding efforts and fundraisers all over the world. The ME/CFS Severely Ill-BIG DATA Study is…

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Ashley Davis Says her Brother, ME/CFS Patient Whitney Dafoe, Is her Hero

At a reception in front of Palo Alto politicians, scientists and others, Ashley Davis gives her heartfelt expressions about her brother and the loss that has occurred because he has a severe case of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. She tells why research is important to her, and she has a message for all…

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Davis Explains the Scientific Process & What’s Needed for NIH to Fund ME/CFS

At a reception at his home, Ronald W. Davis, PhD, our ME/CFS Scientific Advisory Board director, explains what needs to be done to get the NIH to fund ME/CFS research more. Davis has a personal interest because his son is severely ill, staying in bed almost all the time. Davis also explains why studying the…

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A Family Tells the Personal Impact of ME/CFS

(with video) Janet Dafoe and her daughter Ashley gave a detailed explanation of their nightmare journey into ME/CFS as Whitney Dafoe progressively became severely ill. At OMF, we are so thankful for the support and collaboration of Janet and her husband, our ME/CFS Scientific Board Director, Ronald W. Davis, PhD, and their efforts to increase…

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