Open Medicine Foundation®
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ME/CFS and related chronic complex diseases

News Blog

A message from Whitney on Severe ME Day

In recognition of #SevereMEDay, we would like to share this touching message of hope from Whitney (Ron Davis and Janet Dafoe’s son), which he conveyed to his mother with great effort. Whitney offers a reminder to each member of the patient community that they are not alone in this fight: “Last night, when Whitney was…

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New Hub of ME/CFS Research Opens at Harvard Plus the “Hidden Gem” and New Insights

New Hub of ME/CFS Research Opens at Harvard Plus the “Hidden Gem” and New Insights The skeptic in me reared its head when I heard the OMF was funding a new ME/CFS center at Harvard. Was this going to be a real “Center” – a real research hub – I asked myself suspiciously – or…

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The IDO Metabolic Trap

By Christopher Armstrong, PhD Dr. Robert Phair has recently published a paper detailing his “metabolic trap” hypothesis underlying ME/CFS, a theory that combines engineering and physiology put together by a man adept in both fields. Dr. Phair is co-founder and Chief Science Officer of Integrative Bioinformatics, Inc, a small company built around a unique software…

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Harvard Collaboration Research Presentations Now Available

Recordings of individual presentations from the OMF-funded Inaugural Harvard ME/CFS Collaboration Symposium “Finding Clarity” Community Day are now available. Please take the time to view the recordings here. Symposium presentations included a clinician panel featuring Dr. Amel Karaa, Dr. Anthony Komaroff, and Dr. Donna Felsenstein and individual presentations by Dr. Michael VanElzakker, Dr. Ron Davis, Dr….

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Celebrate with Ron and Janet

On July 12th, Ron Davis and Janet Dafoe will celebrate their 50th Wedding Anniversary. On July 17th, Dr. Ron Davis will celebrate his birthday. OMF is inviting you to join us in being part of a special card for these milestones. Donate in honor of Ron and Janet for their celebrations and show them how much our community appreciates their tireless work. All donors will be…

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Celebrated Author Karin Alvtegen Joins OMF Ambassadors

We welcome Karin Alvtegen, one of Scandinavia’s most widely read and appreciated authors, as our third OMF Ambassador. Karin is recognized for her psychological thrillers, which include Guilt, Missing, Betrayal, Shame, Sacrifice, and Shadow, and has established herself as a celebrated bestseller worldwide. Her books have been translated into more than 35 languages. Missing has been made into a praised…

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The ME/CFS Harvard Collaboration building momentum

by Christopher Armstrong, PhD, OMF Science Liaison When the  Harvard ME/CFS Collaborative at Harvard Affiliated Hospitals was initiated last year with funds from Open Medicine Foundation (OMF), it was considered a commitment to co-leaders, Ronald G. Tompkins, MD, ScD, and Wenzhong Xiao, Ph.D., to begin a research operation in one of the world’s most respected…

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Stanford Genome Technology Center Applies to NIH

The Stanford Genome Technology Center (SGTC), under the direction of Ronald W. Davis, PhD, has submitted several RO1 grant applications to NIH to continue and scale up several projects that OMF is funding. Below are descriptions of the newest proposals. By Ronald W. Davis, PhD We recently submitted two NIH R01 applications, one from Stanford…

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OMF Conversations: Dr Ron Tompkins and Dr Alan Gurwitt

Ronald G. Tompkins, MD, ScD, has a candid conversation with patient and advocate, Dr. Alan Gurwitt. OMF is proud to fund ME/CFS researchers like Dr. Tompkins, who are not only world-class scientists but also take the time to listen to patients and learn from their experiences with this devastating disease. Recently, Dr. Tompkins had the…

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Medium: Meeting Whitney

By Jen Brea I’ve spent a lot of time imagining Whitney Dafoe. I’ve looked at as much of his photography and as many photographs of him as I could. I read everything written about him in the public domain. I’ve asked his parents, Stanford geneticist Ron Davis and child psychologist Janet Dafoe, and sister, Ashley…

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