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Community Voices

“ME/CFS Is…”

In collaboration with @lowenergylounge: For ME/CFS Awareness Day on May 12, individuals around the world used their limited energy to share powerful messages completing the sentence “ME/CFS is…” 

These voices reveal the reality of living with this disease—the challenges, the losses, and the urgent need for change. Explore the gallery below and help amplify the voices of the ME/CFS community. Donate to ME/CFS research.

Ali is holding a sign that reads: “ME/CFS is living in pain and fear. Bargaining, frozen in the outskirts of time and reality.”
Niko is holding a sign that reads: ME/CFS is the absence of life.


Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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