Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

Mød OMF’s nyeste ambassadør den anerkendte forfatter Karin Alvtegen

Vi välkomnar Karin Alvtegen, en av skandinaviens mest lästa och uppskattade författare, som vår tredje OMF ambassadör. Karin är känd för sina psykologiska thrillers, bland annat Skuld, Saknad, Svek, Skam, Fjärilseffekten och Skugga, och har blivit en hyllad bästsäljare världen över. Hennes böcker har översatts till mer än 35 språk. Saknad har blivit en brittisk tv-serie som fått mycket beröm och internationella producenter har köpt rättigheterna till några av hennes andra böcker. Hon har också vunnit flera litterära utmärkelser, däribland Glasnyckeln för Bästa Nordiska Deckare . (Foto av Casia Bromberg)

År 2013 insjuknade Karin i ME / CFS och blev svårt sjuk. Hon har sedan dess kommit att bli en aktiv supporter av OMF på Facebook. På sin senaste födelsedag höll hon i en insamling till OMF som blev en stor framgång. Boken “Osynligt sjuk – medan livet passerar”, en bok om ME / CFS, handlar om henne. Ett kapitel i boken  är skrivet av Jonas Bergquist, MD, PhD, som är medlem i OMFs vetenskapliga råd. Hon har ett starkt stöd från sin familj och ME / CFS-gemenskapen, även om hon inte längre kan skriva böcker

Karins popularitet är stor både i hemlandet Sverige och i Norge, Danmark och Finland, därför är vi övertygade om att OMF och vårt budskap om hopp nu kommer att  spridas till ännu fler i Skandinavien.


Se Karins video besked her.

Velkommen til Karin i OMF familien.

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

 

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo