Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

Arrived in London at BRMEC! May 31

I’ve arrived in London at the 12th annual Invest in ME conference (BRMEC7) late Tuesday night. On Wednesday morning we started off the day at breakfast with Drs. Jonas Blomberg and Jonas Bergquist of Uppsala University in Sweden. They updated us on their research funded by OMF.

I am here with Dr. Ron Davis who will be speaking at the IiME Patient day on June 2nd. On Wednesday and Thursday, we joined the other 70 or so scientists at the 7th annual Biomedical Research into ME Colloquium (BRMEC7), where Dr. Davis and many others presented and discussed the details of the latest ME / CFS research. Last night we ended with a nice dinner that allowed for more in-depth discussions of the science. On Thursday morning we met with Dr. Olav Mella and Dr. Maureen Hanson over breakfast. These splendid specialists are two of the three latest additions to our Scientific Advisory Board


Joining me and Dr. Davis in London is Raeka Aiyar, PhD, Communications Director for the Stanford Genome Technology Center, and Ashley Haugen, Events & Marketing Director for the CFS Center at Stanford. All four of us will be hosting OMF’s exhibit table at IIMEC12. We are looking forward to connecting with the patients there personally!

I encourage all of our European ME / CFS friends and supporters to send us your impressions, comments, and feedback. We want to learn and improve how we share information with you and the larger ME / CFS community. I also encourage you to come and join us in one of the many European meetings still to come. Thank you for following our tour!


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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®


Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.


In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.


The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.


About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.


Heather Ah San

Development and Communications Manager