“This significant donation will help OMF accelerate and expand current research into ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) and other chronic complex diseases and to keep fighting for a better future for patients,” said Linda Tannenbaum, founder and president of OMF.
OMF accepts donations of Bitcoin. Make the most of your donation. Donate your bitcoin directly to OMF rather than selling bitcoin and donating the after-tax
DONATE Donate DONATE By Mail or Phone ChecksPlease make checks payable to “Open Medicine Foundation” Open Medicine Foundation29302 Laro DriveAgoura Hills, CA 91301, USA Phone:
GroundbreakingME / CFS Research Your support brings uscloser to the answers. We have raised over $28 Million from private donors, and facilitated and funded the establishment of
October 23 – November 27, 2018 What does your donation support? Learn Here. UPDATE: Thank you for the groundswell of support for Triple Tuesday OMF.
[embedyt]https://www.youtube.com/watch?v=0oeJClgXM-s[/embedyt] Ben Howell, one of our most dedicated volunteers, recently took the time to record a video message to share with the OMF community. Ben
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29302 Laro Drive, Agoura Hills, CA 91301 USA
Phone: 650-242-8669
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Averting a second pandemic:
Open Medicine Foundation leads groundbreaking international study of
Long COVID’s conversion to ME/CFS
AGOURA HILLS, CALIF. — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome — to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.
Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”
OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.
The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.
BACKGROUND
In a significant percentage of patients, infections preceded their development of ME/CFS. For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.
THE STUDY
The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS. Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.
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About Open Medicine Foundation
Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.
CONTACT:
Heather Ah San
Development and Communications Manager
1-650-242-8669
