Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), and Fibromyalgia.

Melinda’s #MayMomentum Story

The Glue that Binds

My name is Melinda and I am an ME / CFS patient, advocate, and OMF Supporter.

OMF has made a big impact on my life. A couple of years ago I was able to attend the Community Symposium and had the opportunity to meet other patients who understand what I go through, while gaining better knowledge of the disease and seeing that something is being done for us. OMF is also impactful for me because I can share OMF videos and resources to help friends and family understand what ME / CFS is.

While I am house-bound and mostly isolated on a daily basis for the last five years, I used to be the “glue” for my friends – who call me “Momlinda” – and I miss being there for them in an instant, whatever the need. I most look forward to being able to be there for them like they need me again.

One thing that happened in the last year that really made me feel like we’re building momentum to end ME / CFS was the launch of the iCPET study with the Harvard affiliated hospitals Collaborative Research Center and now the support of the clinical trial for Mestinon.

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