Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), and Fibromyalgia.

How Patients Are Accelerating Research

I’m very grateful for the outpouring of support we’ve received from OMF community members, people just like you, during our Triple Giving Tuesday campaign. I’m especially inspired by the ME / CFS patients who dedicate their limited energy to fundraising for our work. I am honored to highlight a few of their stories today.

First though, I’d like to invite you to start your own fundraiser for OMF if you haven’t already. All donations to your fundraiser will be triple matched, every day now through December 3.

Barbara Lanciers launched an ambitious Crowdchange fundraiser for Triple Giving Tuesday to take advantage of the triple match. She was diagnosed with ME / CFS about 12 months ago after years of illness and is now supporting OMF-funded research because it provides, “Hope for more effective treatment, hope for a cure, hope for the veil of suffering to be lifted.”

Amie runs an ongoing Team OMF project, knitting personalized stuffed teddy bears for fellow patients and requesting donations to OMF in return. She explains, “I want to do as much as I can to help support OMF so we can find the answers we need.”

Stuart Murdoch, OMF Ambassador and the lead singer of indie pop band Belle and Sebastian, is sharing the news about our triple match with his fans and gaining worldwide attention. As a patient, he supports our work because of our open data sharing approach: “It’s through this collaboration and open sharing of ideas that I think the solution will be found.”

Amy Carlson, OMF Ambassador, actress, advocate, and healthy ally is speaking out on Facebook Live to share the news about the match with her fans worldwide. To date, Amy has raised over $5,800 on her Facebook fundraiser and these donations will be tripled.

These are just a few of the many patients and advocates stepping up to fundraise for OMF-funded research. I deeply appreciate their support, and I encourage you to join us and create your own triple matched fundraiser before the campaign ends on December 3.

Together, we’re making great progress toward the answers patients deserve.


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