Open Medicine Foundation®
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ME/CFS and related chronic complex diseases

Worldwide Tour Blog


Dream. Believe. Do It . . . Join Team OMF in Hope

June 1: Meeting Friends and Collaborators at IiME in London (Day 9)

Good Morning Dear European ME/CFS Friends and Supporters, As I prepare for the Patient Day at the Invest in ME International Conference in London, I quickly wanted to update you on yesterday’s events. OMF again had a very exciting day at the Research Colloquium for scientists. We started off early with a productive breakfast meeting...

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Arrived in London at BRMEC! May 31

I’ve arrived in London at the 12th annual Invest in ME conference (BRMEC7) late Tuesday night. On Wednesday morning we started off the day at breakfast with Drs. Jonas Blomberg and Jonas Bergquist of Uppsala University in Sweden. They updated us on their research funded by OMF. I am here with Dr. Ron Davis who...

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May 29: Newry – Northern Ireland (May 29)

After a very exciting weekend in the Republic of Ireland, I was invited to the other part of the Island, Northern Ireland, which is part of the United Kingdom, by “Hope 4 ME & Fibro”. Thomas McParland was kind enough to come to Dublin to pick me up and drive me to Newry, the first...

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Isle of Man: Improved ME/CFS Care On The Horizon After Linda’s Visit!

Update provided by Isle of Man ME Support Group. On Monday, Celia Marshall Chair of the Isle of Man ME Support Group, said on Manx Radio that improved care for ME/CFS patients could soon be on the horizon. She says talks are on-going with the Department of Health and Social Care about what services could...

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May 30: Belfast – Northern Ireland (Day 7)

On Tuesday May 30th, my 7th day into the European Tour of Hope, I visited Belfast in Northern Ireland. Andy Hugh made it very easy for me and took me by the hand every step of the way from Newry to Belfast. Thank you Andy for taking care of me in such a warm way...

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May 28: Dublin, Republic of Ireland (Day 5)

On Sunday, May 28th Linda gave an inspiring presentation at a public meeting in Dublin at an airport hotel. The meeting was set up by Tom and Vera Kindlon of the Irish ME/CFS Association. Over 80 people attended: half of them were patients, and the other half were parents and caregivers. Linda had the honor...

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May 26: Meeting with Tom Kindlon in Ireland

On Friday May 26th Linda arrived in Dublin (Republic of Ireland) and was picked up by someone voted “Best Taxi Driver” in Dublin. This great taxi driver took Linda to visit the brilliant and famous Tom Kindlon and his lovely, never-give-up mother, Vera. Linda was very honored to being able to visit Tom on this...

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Isle of Man Visit May 24-25: Overall impressions from Linda Tannenbaum

Dear Isle of Man friends, Dear Team OMF friends, I just finished a very heartwarming visit to the Isle of Man, a beautiful island 30 miles by 10 miles with views of the bay almost from everywhere. It is a small “paradise” with lovely people and I had a very warm welcome. The island has...

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May 25: Isle of Man (Day 2)

Linda’s second day started with two meetings that focused on proper medical care for patients and for better school accommodations for sick children, two of the main pillars of OMF. Linda and Team OMF Isle of man met first with the team that currently treats adult ME/CFS patients, Jo Roberts OT and Jugnu Mahayana, Medical...

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May 24: Isle of Man (Day 1)

On Thursday 24th of May, Linda started her European “Tour of Hope” with a very exciting day on the Isle of Man, a beautiful island located in the Irish Sea between Great Britain and Ireland. She had been invited by the “ME Support Group” to work together in a joint mission for better ME/CFS patient...

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