Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

June 1: Meeting Friends and Collaborators at IiME in London (Day 9)

Good Morning Dear European ME / CFS Friends and Supporters,

As I prepare for the Patient Day at the Invest in ME International Conference in London, I quickly wanted to update you on yesterday’s events. OMF again had a very exciting day at the Research Colloquium for scientists. We started off early with a productive breakfast meeting with Dr. Olav Mella (Norway) and Dr. Maureen Hanson (USA), both new members of our Scientific Advisory Board, to discuss ongoing and future collaborative projects. The day was filled with scientific presentations, formal and informal meetings, and friendly chats. Over lunch, Dr. Davis was interviewed by BBC Radio. We will keep you updated on this interview.

In the evening over 20 countries were represented at the preconference dinner, and the fabulous David Tuller was the guest speaker. He gave a wonderful and very passionate talk about the PACE trial and the harm it is doing to ME / CFS research and patients. Kjersti Krisner introduced David, saying, “We have been waiting for someone to make the sun come through the skies.” Kjersti, who is from Norway, is a fabulous “fighting” mother of three adult children with ME / CFS (one severely ill and bedbound). Through her advocacy work for the severely ill, she is very respected in Norway and throughout Europe.  I had the honor of meeting Kjersti at the IiMEC11 last year, where we had a great chat after her passionate heartwarming presentation. This year’s dinner gave Dr. Davis and I the opportunity to meet and greet friends like Kjersti.

Also here in London is “Marathon Mike”. Mike is organizing and running marathons through 28 European countries. His goal is to raise awareness and funds for ME / CFS research. In his blog Mike writes about his European adventures along the road.

I am very much looking forward to my day tomorrow. The Patient Day will be a great opportunity to reconnect with old friends and make new connections in the ME / CFS community. I am excited to hear their stories and to see the hope that research progress will give them!

Warmly,

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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