Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

Thank you for your generous contributions to
#Triple Giving Tuesday OMF. Your support brings us closer to a fully funded research effort and the answers we all seek.
Progress to $1,200,000 goal (USD)
100%

Contributions to our global campaign will be converted to US dollars before being matched.

SPREAD THE WORD!

Campaign Website:  omf.ngo/triplegivingtuesday2020

Facebook@Open Medicine Foundation

Instagram@OpenMedF

Twitter@OpenMedF

Hashtags: #TripleGivingTuesdayOMF  and  #TGTOMF

Step 1

Use our social media toolkit below, which provides sample posts and images to let your followers know about #TripleGivingTuesdayOMF and why you support our mission to #EndMECFS. Tag @Open Medicine Foundation on Facebook and @OpenMedF on Twitter and Instagram when you post.

Step 2

Post stories on Instagram and Facebook about why you support OMF. Don’t forget to use the ‘donation sticker’ feature to select OMF as the organization you would like to support!

Step 3

Use OMF’s #TripleGivingTuesday Facebook profile picture frame to show your support of OMF’s campaign.

 

Step 4

Add a ‘donate button’ to your Facebook posts about #TripleTuesdayOMF

Step 5

Launch your own fundraiser! You can create a Crowdchange fundraiser or set up a Facebook fundraiser and ask your followers to donate there. Let your followers know that the triple match will apply to every donation received!

Use Our Social Media Toolkit

Click and download to save the photos below to share along with your text posts:

Download, save and share on Twitter!

Download, save and share on Facebook or Instagram

Download and save to share as a Facebook profile cover photo, or a cover photo for your Facebook fundraiser!

Sample text to share on Twitter:

Thanks to matching donors, every dollar you donate to Open Medicine Foundation any day of the week will be TRIPLE MATCHED now through International Giving Tuesday on December 1, 2020. Please join me in accelerating research of ME/CFS by donating today: OMF.ngo/TripleTuesday2020

Sample text for Facebook and Instagram:

As some of you know, I have Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS). I’m excited to share that OMF is kicking off their annual #TripleGivingTuesdayOMF campaign today! Thanks to generous matching donors, every dollar you donate to OMF any day of the week will be triple matched now through International Giving Tuesday on December 1, 2020!

Why is this important? ME / CFS is a devastating, life-altering, multi-system disease affecting up to 2.5 million Americans (or 20 million people worldwide), and many more may become afflicted in the aftermath of COVID-19.

While its impact is widespread and devastating, relatively little is known about the disease, no FDA approved treatments exist, and patients are left to deal with the illness with little help from the medical establishment, in many cases for decades.

Fortunately, there is now a committed community of scientists, doctors, and patients raising awareness and making great strides in finding treatments that bring ME / CFS patients some relief and hope for a normal life in the future. Open Medicine Foundation is leading research and making real headway.

When you donate, you help to accelerate this critical research, giving hope to millions.

Please join me by supporting #TripleGivingTuesdayOMF today. 

Or you can visit OMF’s #TripleGivingTuesdayOMF website to discover a donation option that’s best for you.

Thank you for your support

Send a letter or email to invite friends & family to donate!

Share your story with friends and family and invite them to make a donation in support of groundbreaking ME / CFS research. You can use the sample messages as models to send emails or letters to your personal connections.

1. Sample invitation letter from a patient: Download here.

2. Sample invitation letter from a family member: Download here.

3. Sample invitation letter (General): Download here.

4. You can also invite friends and family to donate on social media using our social media toolkit as your guide.

Send a thank you letter to your donors!

Sample thank you letter: Download here

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

 

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo