A Soft Place to Land
By: Avy Summerlind (Lyric Video) https://www.omf.ngo/wp-content/uploads/2019/01/A-Soft-Place-to-Land-lyric-video-by-Avy-Summerlind.mp4
By: Avy Summerlind (Lyric Video) https://www.omf.ngo/wp-content/uploads/2019/01/A-Soft-Place-to-Land-lyric-video-by-Avy-Summerlind.mp4
By Collette Wallace
I have M.E…
I aim for it not to define me
and be all people see
I love socializing
Find traveling mesmerizing
I loved working with multiple brands
And seeing live bands
I am now mainly bedbound on my own
But my love for my interests has only grown
They will always be part of me
And I will not solely be defined with M.E
Despite being constantly ill
Always wishing for a magic pill
I strive to work through the pain
And learn to dance in the rain
Be kind to yourself each day
Push the frustration away
Make a positive mantra & repeat it
To help strong mental health & keep it
Fight feeling down
Reverse that frown
Don’t shed a tear
Smile ear to ear
Keep your head up high
Look at the beautiful sky
Not today, go away,
tomorrow is new start to the day
Ignore friends that dropped you fast
Hold close kind friends that tightened their clasp
It feels like there is no end in sight
But please like me never give up the fight
By Collette Wallace
Author’s Note: Although I Have M.E, I won’t let it define me. I represent this in the drawing I drew of a Hare with Antlers. I sometimes see Hare’s out my bedroom window, they are beautiful. Although this one is different with strange antlers (representing the M.E) it is still a hare and beautiful.
By Zeraph Dylan Moore
I.
It is brutal, terrifying, almost endless, I said,
but there were no words appropriate, and in the end,
I stopped trying to tell people about us.
I was becoming naked around you.
My muscles were dropping away, or rather,
it looked like dropping but it felt like tearing from the bone,
so it was in truth a strange kind of intimacy,
as if I was being prepared for an act of love
that required the most extraordinary nudity.
From the outside, no one knew what was happening.
You look so well, they’d say, you look so good.
At night your love would come and tear me open,
and in the morning I’d see the missing parts.
And people would smile at me and say, I wonder why
you cannot walk and I’d wave my stumps around and scream
that my legs were gone. It was like that, with us.
You were the worst lover.
Every morning I found it harder to get up. It was
like my childhood obsession with leprosy. Back then, I wanted to bask
in the question: what would it be like to die, while you were still alive?
“Going, so slowly, so ugly and so old,” I wrote,
thirteen and already aware of the terror of romance.
I used to have other lovers, before you.
The sky over my head as I hiked winding trails, the pleasure of cycling til my legs went numb,
swimming in the sea, the mystery of soil
& plants, working in the earth.
But you were a jealous lover.
Finally, it was just you, a romance of terror,
a romance of pain and hopelessness.
These were your special talents, for you were talented,
and even if your lovemaking involved no kisses
it was still the most intense I had ever known.
II.
It took a long time after that to get to know you,
perhaps even to forgive you. It took longer still to learn
how to tiptoe around your traps, your pitfalls
that can expand in a moment into canyons,
spasms of emptiness, at their bottom a wine-dark
ribbon, a river as deep as the Mariana Trench.
It took a long time to learn how to love you,
to hold space for your breathless pain,
your sudden and uncontrolled descents,
your demands for silence, for darkness.
And in the sixth year of our love, I turned to you in our bed and cupped your shaking head
in my palms, brushing my thumb over your lips, your tremulous and battered-blue skin.
It is brutal, terrifying, almost endless, I said,
and I love you, and we will survive this.
By Leili Anassori
I am the specter’s negative,
the ghost tale gone awry.
I’ve been yanked from the land of the living,
but I have not been sentenced to die.
I haunt the house of my childhood,
able to look but not to touch,
as the world speeds by me progressing
at a pace I’ve no chance to keep up.
Maybe the reaper took me then returned me,
but put all of my pieces back wrong.
Something vital he stole away with him –
the fuel that allows my life to go on.
The desire to do does not leave me.
I step out into the world as I am,
but we are no longer compatible.
I’m thrown back to my haunt with a slam.
My solid form holds me hostage,
eyes trained on a world that’s not mine.
Burdened by its unmeetable requirements,
yet still burns the will to survive.
So I fashion a life on my shadow plane,
scavenging droplets of joy where I can.
To find meaning in this endless in-between
is not a feat meant for mere mortal man.
I beseech the Olympians of science
to avenge this unnatural theft.
Return to me my living force
while I still have some time left.
By Terry Greenlay
Who are we, but the ones for whom time stands still
we wake to a new day, faced with nothing more than forgotten yesterdays
in unison we cry out, a cacophony of uncertainty and sorrow
i want my life back – it goes unanswered
Who are we, but those friendless souls left without
we wake to another time, upon paths we once walked before
together, we are forgotten, bereft of the capacity to be who we once were
i want my life back – a common echo unheard
Who are we, but people, spirits locked within these mortal shells
we wake without dreams, yet try to savor each and every moment
united within ourselves, for there are no others to understand….truly understand
i want my life back – deaf are the ears that hear but don’t listen
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