Archives: Poetry Submissions

Against Gravity

Caged in her house, Emily Dickinson wrote hope is
the thing with feathers, and I want to know
whether it’s flying to find me by starlight and lay lines.
Will it nestle its heartbeat into my hands
like a chickadee, bringing just enough
of itself to make the day worth the struggle?
Or is it a hawk, circling into the vastness, out of
the narrow confines of my vision?
In fall, my sky empties of cranes and my mind fills
with faith in April’s power of redemption,
but if hope embarks on a fraught migration,
for how long can I keep on singing in the dark?
Mary Oliver maintains that each body
is a lion of courage and precious to the earth.
Fellow sufferers, your fortitude is gloriously golden;
who wouldn’t admire your roaring will to survive?
I like to imagine every lovely one of us supine in the sun,
brilliant birds weaving feathers through our manes—
one day we will rise, against pain’s gravity.

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Thank You OMF

I venture out into the sunlit day
pink lipstick, dangling earrings, bright smile
too soon my head hammers, eyes burn, muscles ache
I stagger back to bed dazzled by my brief
encounter with the uncommon world
but
i am no longer the lonesome warrior
struggling in a war I cannot win
looked on with disdain and doubt
feeling shamed by disbelief

how can I begin to tell you
how it feels to know that now
there is a longed for hopeful future
just within our reach

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Untitled

My life has been brought to a halt

On behalf of a tiresome ailment.

Body and mind defend the assault

Though, I cannot help but fault

And wish that my condition was latent.

When describing myself I must now begin

With a myriad of dismal symptoms.

This description is said over again,

For awareness is low, to my chagrin

In spite of so many victims.

Close friends support with words and prayer

All of them grasping at a positive direction.

Looking from the outside in is not so rare

Since people find the need to compare;

I’m left alone with facts and my reflection.

My mind is more weary than it used to be

Though much about me is.

Exhaustion consumes beyond degree

My disease made me akin to an amputee.

My body feels foreign, like a prosthesis.

Every waking hour I’d rather be asleep

For my fatigue imparts much strain.

The weight of my intrinsic physique

Is much too great now that I’m weak.

Moving is a luxury I cannot obtain.

Alas, I’m here stuck in thought

Wondering about the inevitable.

Although my journey has been fraught

Now I think I have a shot

At being much more capable.

There are always things you wish to erase

No one experiences life without battles.

Soon I will have my saving grace,

I haven’t yet ascended life’s staircase,

I will break free from these shackles.

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Solitude

There is beauty in solitude.
Yet, also loneliness.
I am confined by four walls
Unable to escape.

Sunlight streaks through the window,
But I cannot feel its warmth.
Only the cool breeze of missed opportunity.
The light fades revealing another lost day.

Others stop by to listen in,
Staring at my curiosities.
Eventually they must leave.
I am forbidden to follow.

Each day ends with disappointment,
As I drift off into the nothingness of sleep.
Each day begins with sadness,
As I face the solitude once more.

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A primal scream for ME

This is not a poem; it’s a primal scream.
Because those who should be listening are deaf to us;
Deaf to our suffering, to our plight, to our pleas.
MAKE ME THINK ME
We can’t even agree on a name for the disease,
Never mind what’s wrong or what to do about it. Please.
The human suffering is intolerable and cruel
But mostly passes unheard and unseen.
MAKE ME THINK ME
Ignorance would be a defence if I was the only case,
But there are 20 million others just like me.
Too ill to speak out or to fight to be seen,
Our battle is just to keep going; to still be.
MAKE ME THINK ME
75% of us are women and many children are affected too.
25% of us are housebound or bedbound
So we need you to fight for us:
To fight for our dignity, to ease our suffering, to find out what is wrong.
MAKE ME THINK ME
The system is broken; it has been for so long.
MAKE ME THINK ME
To you from failing hands we throw the torch.
MAKE ME THINK ME

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Can you see me

Do you see me lying here?
I’m real. I feel.
See the picture on the wall?
That’s me, how i used to be.

Mute inside this immobile form is me.
Compressed, raw, real, feeling, thinking.
Still me.

I don’t want to be a burden,
so I don’t say too much.
But there are days I would cry, if I could.
But I can’t breathe if I cry.

Hearing every sound.
Clocks ticking, doors banging, people talking, laughing.
It steals my energy. Hurts physically, emotionally.
But you can’t see.

The door keeps banging. The clock keeps ticking. Lights too bright, odours too strong.

If I’m not the perfect patient will you still care for me?
Another week gone. Another month. Another year.
But I’m still here.

There’s a gulf growing. We live in different worlds you say.
Yes we do but I want to connect with what used to be our world.
But you don’t have time.

I keep still, trying to be no burden.
Inside the anxious thoughts come, hit a high.
I wait quietly for them to go.
I walk them out through the door of my mind.

I imagine the sun still shining above the clouds, the flowers, the scent of rain, the feel of water, a hug.
It’s so long since I’ve had a hug.

In slow motion I drink, eat, weight shift to prevent bed sores.

I hear you escaping to the beach, planning time away, another holiday.
You’re trying but feel so helpless.
Rejected by the illness, you want to run away.

Let’s run away together.
I’ll imagine the sun above the clouds.
You’ll feel the water when you swim.
Joy! Still there.

Can you stay if I’m the perfect patient?
If I’m not a burden?
I’m trying.

Inside this quiet form is me.
Bag of bones that I am.
Unwashed, unkempt.

But I dance in my mind to songs I remember,
I write stories, plan for a future.
I wonder how I can help my kids.
I still care.

Listening, always listening.
The sound of footsteps.
The kitchen sounds.

I used to have a home
now I have a room.
I used to have flowers
now I have weeds.

But there’s a beauty in weeds.
I see them dancing through the crack in my curtains.
Graceful grasses seeding, birds balancing on the stalks.
Subtle colour changes.

Can you see me, can you hear my heart?
I’m alive.
I’m the me you see in the picture on the wall.

Sit awhile, don’t run away, please stay.

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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