Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

A primal scream for ME

By Craig Morris

This is not a poem; it’s a primal scream.
Because those who should be listening are deaf to us;
Deaf to our suffering, to our plight, to our pleas.
MAKE ME THINK ME
We can’t even agree on a name for the disease,
Never mind what’s wrong or what to do about it. Please.
The human suffering is intolerable and cruel
But mostly passes unheard and unseen.
MAKE ME THINK ME
Ignorance would be a defence if I was the only case,
But there are 20 million others just like me.
Too ill to speak out or to fight to be seen,
Our battle is just to keep going; to still be.
MAKE ME THINK ME
75% of us are women and many children are affected too.
25% of us are housebound or bedbound
So we need you to fight for us:
To fight for our dignity, to ease our suffering, to find out what is wrong.
MAKE ME THINK ME
The system is broken; it has been for so long.
MAKE ME THINK ME
To you from failing hands we throw the torch.
MAKE ME THINK ME

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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