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Pittsburgh City Paper: Despite the number of Americans living with ME / CFS, little is known about the debilitating illness

Open eyes, wiggle toes, sit up, sink down, back up again. It’s 10 a.m. and Stefanie is just waking up. As part of her usual routine, she’d usually stay under the covers for only another hour before gingerly climbing out of bed.

But two days ago she overexerted herself. Add that to her usual brain fog, gastrointestinal issues and the not-so-usual muscle aches she’s been feeling and it equals another day spent in bed. It will be her second day in a row, just one of a handful of days this month, and of a few dozen days this year — her third year living with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome.

Stefanie, 27, was recently bed-bound this past September after she attended a local event meant to raise awareness about her illness.

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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