Open Medicine Foundation®
Leading research. Delivering hope.
ME/CFS and related chronic complex diseases

News

OMF Newsletter – September, 2016

Metabolomics Study Results Take Center Stage The suspense is over, the results are in: Robert K. Naviaux, MD, an esteemed member of our Open Medicine Foundation Scientific Advisory Board, just published “Metabolomic Features of Chronic Fatigue Syndrome” by Naviaux RK, et al. in the prestigious journal, Proceedings of the National Academy of Sciences (PNAS). Dr. Ron Davis said: “This landmark ME/CFS...

Read More

My Dream…

The sick have only one wish. It is to be healthy. So it looks to me. But I also have a dream, a big beautiful dream that when I turn 50 years old we will start a collection for ME research. For, the truth is that I do have a chance to get better so...

Read More

Viruses and CFS: Statements by Ron Davis and Bob Naviaux

Ron Davis: There is a great deal of evidence that a variety of viruses can initiate ME/CFS, but it is less clear that a virus is involved in sustaining the disease. However, some patients may have a continuous problem with viruses, especially those viruses we always carry like EBV and HHV6. These viruses are usually...

Read More

UPDATED: Metabolic Features of Chronic Fatigue Syndrome – Q & A with Robert Naviaux, MD

Dr. Naviaux has published a ground-breaking study “Metabolic Features of Chronic Fatigue Syndrome.” Below are answers regarding his results. Link to published paper Q1. Some people still argue that CFS is not a real illness but all in the mind. Does your discovery of a chemical signature help shatter this myth?  Yes. The chemical signature that we...

Read More

ME/CFS Ground-breaking Metabolomics results by Naviaux RK, et al

Comment by Ronald W. Davis, PhD The publication, “Metabolic Features of Chronic Fatigue Syndrome” by Naviaux RK, et al. is a landmark in ME/CFS research. It is the most important and groundbreaking study of ME/CFS to date. Extending recent indications of metabolic alterations in ME/CFS, this study provides the first comprehensive, quantitative demonstration of the...

Read More

Prognosis of ME/CFS – by David S. Bell, MD

Of the many mysteries that have surrounded ME/CFS is the difficulty with predicting the long term outcome; what is the difference between a relapse, a temporary worsening, and true deterioration where there is a downward spiral of the illness over longer periods of time? There is no known biologic marker for disease severity at present,...

Read More

OMF Newsletter – July, 2016

ME/CFS Severely Ill Big Data Study Update: Sample Collection Completed OMF is excited to announce that sample collection has been completed for the ME/CFS Severely Ill Big Data Study. The completion of sample collection means we now have the most multifaceted and downreaching data ever gathered to analyze and test in our search for a cure....

Read More

Suggestions to NIH on Needed ME/CFS Research Strategies – by Ronald W. Davis, PhD

We are grateful for the opportunity to provide input to the Trans-National Institutes of Health (NIH) ME/CFS Working Group as they develop strategies to guide NIH’s research efforts and priority setting for research on ME/CFS. Our mission at the Stanford Chronic Fatigue Syndrome Research Center is to discover causes, a molecular diagnosis, and treatment options...

Read More

Metabolomic and Chronic Fatigue Syndrome – by Robert Naviaux, MD

Testing an Exciting New Technology for Diagnosis and Management of ME/CFS and Other Illnesses We are excited to work with the Open Medicine Foundation (OMF) to help blaze a new trail in ME/CFS research. Dr. Robert Naviaux and his team at the University of California, San Diego recently completed a metabolomics study of over 80...

Read More

ME/CFS in Children – by David S. Bell, MD

Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a chronic illness with a long and complex history. Estimates of its frequency range from 0.1% to 2% of the population in the United States1. Severity of the illness can range from trivial, where it is impossible to make the diagnosis to fatal, but this latter is, fortunately,...

Read More