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ME/CFS and related chronic complex diseases

News Blog

OMF Sponsors Second Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University

Open Medicine Foundation Delivers Hope to Millions of Patients For Immediate Release Sept. 20, 2018 (Los Angeles, CA) – Open Medicine Foundation (OMF), the premier nonprofit organization investing in research to cure myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), sponsors the Second Annual Community Symposium on the Molecular Basis of ME/CFS on September 29, 2018, at Stanford...

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Ronald W. Davis’s presentation at the IIMEC13

Dr. Ron Davis presented a research update at the International Invest in ME Conference 13 in London. His presentation reviewed the latest progress on research funded by OMF. View Dr. Davis’ full presentation here. The full IIMEC13 conference DVD can be ordered here. Gratefully shared with permission from Invest in ME Research. Transcript – Dr. Ron...

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CNN – Millions suffer from an invisible disease: My ME/CFS story

Author: Ryan Prior Every morning, I shave, brush my teeth, and swallow a dozen pills. I look in the mirror and thank God I can even walk out the door. Since 2007, I’ve lived with an incurable disease known as chronic fatigue syndrome. Internationally, doctors call it myalgic encephalomyelitis, or ME/CFS. The tongue-twister means “painful...

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InsideSources – The Monster Disease Medical Schools Don’t Mention

Author: Llewellyn King   For 10 long years, I’ve been writing and broadcasting about Chronic Fatigue Syndrome, now called Myalgic Encephalomyelitis (ME). Like all chronic diseases, it’s brutally unfair to the afflicted. But ME also can claim to have been unfairly treated by doctors and medical researchers, the pharmaceutical giants, and the politicians who control...

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South China Morning Post: Why ME, or yuppie flu, is like Aids was once – misunderstood or dismissed as not real, and ignored by most doctors

Author: Anthea Rowan Twenty million people suffer from myalgic encephalomyelitis, yet there is still no test for it, nor any approved treatment. We talk to a mother whose daughter has the illness, and who has consulted dozens of doctors in search of help Until my friend Caroline introduced me to myalgic encephalomyelitis, or ME, I...

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Message from an OMF Volunteer

Ben Howell, one of our most dedicated volunteers, recently took the time to record a video message to share with the OMF community. Ben is OMF’s liaison/correspondent on the Phoenix Rising forum, and was also instrumental in setting up the bitcoin donation program that allowed us to receive a $5 million donation from the Pineapple...

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CDC releases updated website on ME/CFS

(Press Release by CDC) The Centers for Disease Control and Prevention (CDC) today released an updated website for healthcare providers about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Stethoscope Public domain image/Darnyi Zsóka The new site is designed specifically with clinicians in mind and offers information about how physicians can better assess and help their patients manage the illness. CDC’s...

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ME/CFS Alert: Llewellyn King interviews Dr. David Systrom

This excellent ME/CFS Alert video by Llewellyn King is an interview with Dr. David Systrom, a key member of our team at the newly OMF funded Harvard ME/CFS Collaborative Center. “Dr. Systrom covers how an interest in exercise intolerance led him to Myalgic Encephalomyelitis. He talks about his work, a new research incubator he has assembled, the testing...

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HealthRising: New Harvard Chronic Fatigue Syndrome (ME/CFS) Research Center Fulfills Crucial Need

by Cort Johnson The new Harvard research center will focus on a crucial part of ME/CFS – the muscles. In May the Open Medicine Foundation announced they’d committed a major chunk of change – $1.8 million –  to fund an ME/CFS Collaborative Research Center at Harvard Medical School affiliated hospitals. With the addition of the Harvard Center, chronic...

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Ron Davis introduces NIH grant project (video)

We are pleased to share a new research update by OMF’s Scientific Advisory Board Director, Ronald W. Davis, PhD, produced by Ashley Haugen. In this brief video, Dr. Davis talks about his newly funded NIH grant. This grant will fund research for 5 years at $500,000 a year and will involve 15 collaborators, 9 of which have never worked...

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