We are thrilled to announce that May Momentum, one of Open Medicine Foundation’s (OMF) largest fundraising campaigns of the year, kicks off on May 1, 2021!
In recognition of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Awareness month, May Momentum is a special annual effort by OMF to increase awareness and raise funds to advance urgently needed research into ME/CFS and related chronic, complex diseases, including Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID Syndrome (also known as Long COVID).
During the 2021 #MayMomentum campaign, we will share inspiring stories of people within our community, update you on exciting research developments and celebrate the advancements in our understanding made possible by your generosity.
And for the first time ever, you will hear directly from the Directors of the OMF funded Research Collaborative in special video updates throughout May.
Since OMF’s start in 2012, we have raised over $30 Million dollars, facilitated the establishment of the prestigious, five member, ME/CFS Collaborative and brought together an alliance of brilliant scientific minds dedicated to ending ME/CFS and related chronic, complex diseases. Our accomplishments to date are only made possible by our valued community’s generous support, large and small.
This year, we invite you to help us continue energizing research efforts by supporting May Momentum. Check out the following ways to get involved and ensure this year’s campaign is a success!
We are passionate about winning this fight! OMF works every day to push research forward, seek new collaborative opportunities, and attract the resources necessary to win the fight against ME/CFS and related diseases, returning millions to the healthy lives they deserve.
We sincerely hope you will join our worldwide community and support OMF during this year’s #MayMomentum campaign. Together, we can amplify our mission to end the suffering endured by millions worldwide.
If you are able, please consider contributing to our effort to uncover research-based answers.
Help us improve the quality of life for all sufferers of ME/CFS and other chronic complex diseases, such as Post Treatment Lyme Disease Syndrome and Fibromyalgia.
Averting a second pandemic:
Open Medicine Foundation leads groundbreaking international study of
Long COVID’s conversion to ME/CFS
AGOURA HILLS, CALIF. — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome — to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.
Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”
OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.
The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.
In a significant percentage of patients, infections preceded their development of ME/CFS. For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.
The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS. Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.
About Open Medicine Foundation
Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.
Heather Ah San
Development and Communications Manager