Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

Ice2Ice Challenge – Cyclist Michael Strasser

ICE2ICE For A Cure

UPDATE: Michael Strasser is now the world record holder and in the Guinness Book of World Records for this ride. Michael completed the Ice2Ice Challenge in 84 days 11 hours and 50 minutes, shaving 15 days 1 hour and 6 minutes off the previous world record.

His effort raised over $26,000 to support OMF’s research.

Michael shared, I do not take it for granted that I can push my body to such limits as I did in my project #ice2icebike. It makes me very happy and I am thankful that I could raise 24.000€ with my project to support the research of ME / CFS to know a little more about these diseases and to maybe cure them one day.”

We are grateful for Michael’s friendship and support.

_________________________________________________

After beating the world record as the fastest single cyclist to bike from Cairo to Cape Town, Michael Strasser’s life only sped up. However, that is a sharp contrast to his close friend Sarah. Sarah has ALS and since she became Michael’s roommate in 2016, her life has only slowed down.

Since they moved in together, Sarah has inspired Michael to tackle an even larger challenge. Now, Michael is completing project Ice2Ice where he is biking across North and South America from Alaska to Patagonia, Argentina to raise money for ALS and ME / CFS. At 23,000 kilometers, this is the longest drivable route in the world. Michael is racing as a part of Racing4Charity, a group that combines the spirit of sports with charitable benefits. Its members are all ambitious sports people, competitive athletes as well as fitness-oriented amateur athletes.

Sponsor Stroeck Bakery, who inspire healthy eating for active lives, is also a supporter of OMF.

As of this post, Michael is over halfway through his journey. He aims to beat the Guinness World Record of 117 days and 5 hours. Currently, he is beating the record by over 11 days and 8 hours.

You can follow his journey here through live trackings and blogs posted every one to two days and on his website.

www.strassermichael.at

https://strassermichael.at/n/racing-4-charity/

https://www.facebook.com/strassermichael.at

UPDATE: Michael Strasser is now the world record holder and in the Guinness Book of World Records for this ride. Michael completed the Ice2Ice Challenge in 84 days 11 hours and 50 minutes, shaving 15 days 1 hour and 6 minutes off the previous world record.

His effort raised over $26,000 to support OMF’s research.

Michael shared, I do not take it for granted that I can push my body to such limits as I did in my project #ice2icebike. It makes me very happy and I am thankful that I could raise 24.000€ with my project to support the research of ME / CFS to know a little more about these diseases and to maybe cure them one day.”

We are grateful for Michael’s friendship and support.

 

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

 

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo