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How can we have missed this disease?

typewriterHow can we have missed this disease?

I read about people desperate for sunshine and air and being homeless and not only do I too crave the sunshine but I dread what may be coming. A marriage made in hell, a managerial job which put me into a direct mobbing situation and the accidents and job loss that those situations can cause, deaths in my family both human and non, 8 surgeries in 2 years where a world renown surgeon could not get me out of pain, now flu shots put my blood pressure into the ambulance zone.

How can we as humans, with medical professionals, have MISSED this disease?  Is it from childhood inoculations? I am on doctor/specialist/internist/pain manager number 20. But I HAD symptoms of pain, now exacerbated with all that has happened, as a child. I also had 10 days in isolation with an upper respiratory infection that never was defined. And then the pain lightened up, until 11 years ago when I broke an ankle. And the “crashes” terrify me.  A coma of sorts I guess. Ok to move your eyes, but nothing else. I am blessed with a forest, aging but much loved home, but I am now unable to keep up with anything except the most basic of items.  I work because I love it and I must and it defines me. And I want to do a great job. But days are extremely difficult if I don’t watch my energy expense and sometimes even if I do. And I now dread what might be coming, what has come to some of us, much younger than me. But we missed this disease and now there are people in really desperate shape or getting there.

We must get the word out and the money in as quickly as possible, to help the researchers who are now scrambling to make up time!

R Linn

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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