Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

Forbes: Entrepreneur Needed To Cure Anti-Initiative Disease

Bruce Kasanoff in Forbes magazine seeks a a world-changing entrepreneur with money, connections, and audacity.

Perhaps 20 million people worldwide have had their lives curtailed by what I’m calling the Anti-Initiative disease. (In a moment, I’ll tell you its more traditional names.)

This disease is horrific in that it literally punishes its victims when they display initiative. For example, if a patient who can’t get out of bed for weeks then has a good day and decides to go sit in her backyard, she may then be dramatically worse for months.

A committee that studied this affliction suggested that it should be called “systemic exertion intolerance disease, or SEID… (because this) name captures a central characteristic of the disease: the fact that exertion of any sort— physical, cognitive or emotional—can adversely affect patients in many organ systems and in many aspects of their lives.”

In other words, it punishes initiative of any sort.

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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